Still suffering many years later - Endometriosis UK

Endometriosis UK

70,534 members52,080 posts

Still suffering many years later

Lilendowarrior profile image
0 Replies

I have had “bad periods” since I started them at 10, at 12 I was given the pill to try and help. I have been on and off contraception since then.

I have been with my OH for 4 years been trying for 2 years to have a baby. No luck, been told I likely have endo finally getting an mri. Been told I need to loose weight for surgery. I have pain all the time. During periods, during ovulation, after sex it’s never ending. I have been put on modified release Dihydrocodeine to help with the pain. Most days I can only eat one meal. I am now struggling with work. I feel so depressed due to the pain, I just don’t know what to do anymore. I am trying to loose weight but even walking is becoming harder due to the pain I am in. I know there are people worse off than me, I just don’t know what to do anymore.

Written by
Lilendowarrior profile image
Lilendowarrior
To view profiles and participate in discussions please or .
Read more about...

You may also like...

9 years later! - still at a loss.

whenever I had my period I was put onto the pill to stop my periods and have been on it ever since....

Almost a year post laparoscopy for endo and still suffering

debilitating pain, spreading from my pelvic area, my lower back and down my legs. I have been...

Back to Square 1 - 16 years later!

HORRENDOUS. I have been off work, loosing way too much blood, racked in pain. Thank god I got an...

Hi, new to this so bit nervous! OK I have suffered with endo for many years and I have recently been offered a hysterectomy. I'm 35 and

can't have kids due to this charming condition. I've done the research and seen the pros and cons...

How many of you suffer from fatigue?

experience endo as I have now seen 2 gynes and neither seemed very helpful. I know I only have 2...