As the stupid ***** of a surgical matron said at my hospital meeting “there’s stage 4 endometriosis, and then there’s you!”
Like I explained, previously, I had major surgery, 2016, kept on 3 monthly follow up, to make sure my disease didn’t return(?) LOL! Funny, it was never gone! Bounced between Zoladex/combined pill with no relief, then bam, deaths door!
Turns out I have DIE widespread, stage 4+ in all the worst places…
Well, I shouldn’t be under Gyneacology, I should be under oncology and endocrinology!.. To be fair, my consultant is an oncologist! A **** one though! I have been told to have my complete care moved to Christie’s in Manchester! Out of Terriary care and placed under cancer care!
And my hospital had a nerve to tell me, after I almost died from complications, that Endo doesn’t kill 🤣.
Hopefully, very few people have disease as severe as mine, but, if this sounds familiar to you, maybe you should be questioning what level of care you’re actually receiving, and by who! Cuz your disease may not be as benign as they make you believe.
Coming from one sick person, who’s currently having to battle hard for the correct care, after 5 long years of once again being told “it’s all in my head!”…..
Experience with Kings College Hospital, London
Stage 4 & Fertility
Endo stage 4 NI specialist 
pregnancy after surgery? 
