Wide spread cronic pain diagnosis - Endometriosis UK

Endometriosis UK

72,117 members52,734 posts

Wide spread cronic pain diagnosis

Mavis88 profile image
0 Replies

Hi everyone, so my first time writing on here although I come on to read and try to offer some comfortto others . So I had cervical cancer in 2020 at 31 and had a couple of operations to remove large parts of my cervix (all clear) now but I had been left in pain for years but they wouldn't listen. Since still in pain every day lucky if I get afew goodish days a month. I had a laparoscopy in May last year and they diagnosed endometriosis on my bowel,bladder,kidneys and womb due to where it is they only managed to remove abit from my womb and I've had no improvement pain wise 😒. I am waiting to see a specialist 15 weeks and counting my treatment options are even more reduced due to the cancer history. I was wondering if anyone has been in similar situation? My doctor said on the phone on Friday that they are referring me to pain management course as they are now classing me as have wide spread cronic pain? Anyone else have this? I'm so confused when I Google it fibromialga keeps coming up? When I asked the doctor she just described someone in pain in more than one area for longer than 3 months which has angered me its been literally 5 years plus. On looking into fibromialga I tick literally every box but my pain is all from top of rib area right downing that makes any sense this journey feels so long and lonely. Sorry big rant xxx

Written by
Mavis88 profile image
Mavis88
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

adhesions in mri - please help

hi everyone - I had an mri to assess whether or not to go ahead with a lap. I have recurrent...

hi sorry it’s me again … I’m worried about taking estrogel

hi there anyone had estrogel? I’m 31 and was I am currently on prostrap injections for...

can someone advice me on pros trap please

hi there I have been told to go on oristrao until I have my hysterectomy but they want to keep my...

Fatigue, Adenmyosis and Endometriosis

I was wondering what peoples experiences were with fatigue and Endo and Adeno. I have always been a...

Should I complain about doctor?

My sister saw one of the GPs at her surgery a few days ago because she believes she may have...