Wide spread cronic pain diagnosis - Endometriosis UK

Endometriosis UK

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Wide spread cronic pain diagnosis

Mavis88 profile image
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Hi everyone, so my first time writing on here although I come on to read and try to offer some comfortto others . So I had cervical cancer in 2020 at 31 and had a couple of operations to remove large parts of my cervix (all clear) now but I had been left in pain for years but they wouldn't listen. Since still in pain every day lucky if I get afew goodish days a month. I had a laparoscopy in May last year and they diagnosed endometriosis on my bowel,bladder,kidneys and womb due to where it is they only managed to remove abit from my womb and I've had no improvement pain wise 😒. I am waiting to see a specialist 15 weeks and counting my treatment options are even more reduced due to the cancer history. I was wondering if anyone has been in similar situation? My doctor said on the phone on Friday that they are referring me to pain management course as they are now classing me as have wide spread cronic pain? Anyone else have this? I'm so confused when I Google it fibromialga keeps coming up? When I asked the doctor she just described someone in pain in more than one area for longer than 3 months which has angered me its been literally 5 years plus. On looking into fibromialga I tick literally every box but my pain is all from top of rib area right downing that makes any sense this journey feels so long and lonely. Sorry big rant xxx

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