Help! PCOS diagnosis/query endometriosis - Endometriosis UK

Endometriosis UK

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Help! PCOS diagnosis/query endometriosis

EGBee profile image
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Just been diagnosed with Pcos after 12 years of battling painful, heavy periods. Although cant argue with the scan showing the pcos, my symptoms actually add up to Endometriosis more than pcos. Latest visit to Gp today after heavy bleed last 5 days, with large blood clots, sharp stabbing pain right in my bladder. Gp more interested in giving painkiller and hormones to cover symptoms than looking into Endometriosis. How have people had a diagnosis? Anyone else with pcos had similar symptoms/experiences?

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EGBee
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yellowfreckles profile image
yellowfreckles

Hiya, yes exact same thing happened to me. After experiencing chronic pelvic pain I had an ultrasound which showed my left ovary was polycystic. My GP then diagnosed me with PCOS without a second thought and said that was the cause of my problems. She was of course completely WRONG (as GPs so often are with gynaecological issues) for two reasons: 1) PCOS does not cause pain, and 2) you cannot diagnose PCOS just by seeing that an ovary or ovaries are polycystic on a scan. Many women have polycystic ovaries without having PCOS; to diagnose PCOS, you need polycystic ovaries AND a blood test which shows your hormones are out of whack.

After going to a private gyno, we did a blood test which showed I do not have PCOS. I then had a laparoscopy which found the cause of my pain: endo. I would say you need to push to see a gyno with experience in endo, and if you want, push for a lap. Do not accept a PCOS diagnosis without a blood test. Hope you get the answers you’re looking for soon xx

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