Need advice as at wits end…🙁 endometrios... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Need advice as at wits end…🙁 endometriosis back pain

28Granville profile image
2 Replies

Please help… I have looked 5 months pregnant since I had my son 7 yes ago. He was c secretion, at birth I had sterilisation due to a hernia, then just 12 weeks later, op to remove umbilical hernia. My ‘bloat’ is constant no matter what I change in diet, exercise or weight I am. Last year, diagnosed with endo, & ‘ bulky womb’ put on decapeptyl, now put on mini pill & norestherone to stop the flooding every other period. Last few weeks… horrendous lower back pain… no follow up or answers…. 😞

Written by
28Granville profile image
28Granville
To view profiles and participate in discussions please or .
2 Replies
Angel1i profile image
Angel1i

Hello.. you need to insist on getting some basic tests done especially if you are bleeding abnormally. See a different GP, or insist that you get investigations done as your symptoms are getting worse. Noresthisterone can cloak the symptom of bleeding and allow anything more serious to be hidden. I know this from experience. You should be having a CA125 test and a PV ultrasound at the very least being carried out.

28Granville profile image
28Granville in reply to Angel1i

Than you so much for your reply. I’ve been put on these tabs because the flooding I sometimes get actually prevent me from going to work…the mini pill desogesrel I’ve been on for just over a month but there’s days where I’m feeling so low on it, just can’t seem to shake it off. I actually went for a private yesterday with Bluecrest, funnily enough they did do the ca125, and also looked at having a stool sample and urine too. They’ve done liver & kidney so will be intro to see what it shows… the bloating has been like this for 7 years since c sec, sterilisation and hernia op. All tests since have said it’s ‘gas’… funny how I never had it before though!

You may also like...

Endometriosis back pain

Hi not sure if this could be due to my endo but every morning I wake up in so much pain with my back

Pain relief advice for endometriosis

Christmas everyday I have hot sharp shooting pain in my lower back and left hip leg, walking...

No endometriosis after laproscopy. Please need advice 😔

a private consultant last year who was positive that's what it was and I was put on the NHS list....

Wits end

next week. The Dr hasn't prescribed me anything but I feel all these symptoms are linked to endo...

very young for endometriosis! need help and advice please