Insomnia with zoladex : How does / did... - Endometriosis UK

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Insomnia with zoladex

My_adventures profile image
12 Replies

How does / did anyone cope with the insomnia on zoladex?

Ive been awake since 2am on Christmas day and this getting ridiculous, every day I am awake from 2/3 am. Have n problem getting to sleep at all. Just getting past 2am

Any tips or advice greatly received.

Happy Christmas everyone

Abby

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My_adventures
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12 Replies
Moon_maiden profile image
Moon_maiden

MorningWhether it was pain or Zoladex the pain consultant suggested Amitriptyline, it’s used for nerve pain and helps with sleep. It doesn’t work all the time though and was awake at around 4:30 this morning 🤦‍♀️

I don’t have coffee apart from first thing. Maybe chamomile tea in the evening. Valerian and passiflora are other night time herbs. Given there is some hormonal attachment to Endo, did they give you HRT?

I hope the rest of the day goes better for you, it’s exhausting though

My_adventures profile image
My_adventures in reply to Moon_maiden

Hey Yeah I'm on tiblone. And I'm the same as you, one coffee in the morning and only herbal tea the rest of the day. Try and some exercise each day as I was told that would help. Tried meditating, reading no phone etc etc.

But it's like my brain just kicks in at 2am 🙈

Hope you've had a good day!

Thanks

Abby

Moon_maiden profile image
Moon_maiden in reply to My_adventures

You’ve tried pretty much most things.Can you con anyone into giving you a foot massage? Particularly big toe, pad just under and around ankle, gently, not rough at least, main hormone points in reflexology. Has to be a hormone trigger somewhere, too precise.

Quiet day here, how’s pain been for you?

My_adventures profile image
My_adventures in reply to Moon_maiden

I have been ok with pain the past two days. I find if I get a good walk in, it eases it so much. But can only do this when not at work as only a walk seems to help. It's so much to handle sometimes isn't it, pain, insomnia trying to eat properly, not do this or that. It's like managing a project or something!

Going to try the foot massage tonight!

Moon_maiden profile image
Moon_maiden in reply to My_adventures

Way to much to handle at times for sure. I avoided getting anything done when younger about periods. Keep pushing to get the right treatment.

MamaofFurBabies profile image
MamaofFurBabies in reply to My_adventures

I am just the same 😔 so frustrating isnt it xx

Moon_maiden profile image
Moon_maiden in reply to MamaofFurBabies

Far too frustrating. How has your Christmas been?

Rocket14 profile image
Rocket14

Hi. I'm struggling with insomnia just the same as you, its horrible. My skin is terrible, my blood pressure seems to be all over the place and the headaches and migraines are daily. Normally my blood pressure is ok and I have to be very careful with migraines as I suffer from Hemiplegic migraines so I thinking if zoladex is worth it.

I hope it gets better for you all.

My_adventures profile image
My_adventures in reply to Rocket14

Oh it's awful isn't it! Take care of you! ❤️

CupcakeL profile image
CupcakeL

Hi,

I’m on Decapeptyl injection rather than Zoladex with no HRT/add back but I’ve found taking a 80mg magnesium supplement before bed helps me sleep through. If I forget to take it for a couple of nights I’m awake from 2/3am so I definitely think it’s the magnesium which is helping 😊

My_adventures profile image
My_adventures in reply to CupcakeL

I do take magnesium, I don't know what the dosage is and I take it in the morning. I'm going to look at the dosage and take in the evening! Thanks so much!! ❤️

Escapologygirl profile image
Escapologygirl

i was on decapeptyl for 6 months and the insomnia was ridiculous and i never suffered from it before. the migraines are constant and again something i never had before either. my GP prescribed me melatonin to help me sleep - hope you are ok

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