HELP - advice on how to receive proper care and treatment

[Spangalow07]

Hi ladies, hope everyone is keeping well?

How are you all managing with the delays in being able to see consultants and receive medication etc? I had an appt (telephone, unable to do face-to-face in my area) and was told I would need to begin Zoladex due to severity of Endo and pain management, this was over a month ago and the consultant has still not even written the letter to be sent to my GP. On top of that my GP surgery only has one nurse and her appt waiting time is 9 weeks which I cannot book in advance without the said letter!

I am in a really bad way managing my Endo at the moment both physically and mentally, and this just seems to be the icing on the cake.

I have sought advice from the hospitals PALS service, but does anyone have any further advice or tips to be taken seriously or be heard at the moment?

I always feel like women with Endometriosis have such a disadvantage when it comes to diagnosis and treatment, and now it seems my full time job (on top of my actual full time job) is to chase consultants and receive proper care.

To make matters worse my consultant even said my case is really severe and it was a priority for me to start Zoladex!

Sorry for the rant.

x

[Prettythings1]

So sorry you are going through this and are struggling with the pain

I know how frustrating it is to wait to be seen I’m still not had my initial consultation with the specialist I was referred at the beginning of 2020

Sorry I don’t have anything helpful to say xx

[Spangalow07 in reply to Prettythings1]

That is such a long wait, have you managed to chase it up with them/do they have a reason why this is taking so long? Is it your first appt? If so, my best advice would be to keep on fighting until you are heard. It can take a long time to find a GP/Consultant/Nurse to listen to you, but once you do find someone it makes all the difference. x

[FazzyB]

Hey, Sorry to hear about your struggles.

I've had a simular issue

So I chased the hospital and made them aware that my new medication information (letter from consultant) had not been sent to my GP. Which was delaying my medication time and overall issues faced with endometriosis and adenomyosis.

This was resolved very swiftly and before I knew it I was making the appointment for the injection to be administrator by the GP.

All the best