Adenomyosis and endometriosis

[hazzahill12]

Hi

I have both endo and adenomyosis both diagnosed a few years ago after a laparoscopy. My period pain and ovulation pain was so excruciating and I bled sooo heavy and constantly in between periods after sex , at ovulation.

I also have really bad bowel issues especially around the time of Ovulation or a period. I had endo diagnosed although told only mild and they didn’t think endo was responsible for all my pain. I saw a specialist who advised me that the adenomyosis was for me both focal a single mass at the fudus of my uterus and diffuse lots of different small patches scattered around. The focal mass was growing into my womb tissue and effectively part of my womb. My bowel was attached to my womb from the endometriosis and I no longer have a pouch of Douglas hence my bowel issues. I was told the adenomyosis was responsible for all my severe pain and constant bleeding.

I was also advised my chances of conceiving were less than 1% and I’d need ivf support also 6 months of down regulation drugs. As surgery would mean taking the mass at the fundus out by cutting/ taking a clear margin of good womb tissue around it, effectively removing the adenomyosis tissue but by doing this it would reduce the size of my womb and was high risk surgery.

My main concern was trying to conceive at this point id been trying for 10 years, so I went on zolodex for 6 months horrible drug puts you in the menapause which for me was not nice, however my symptoms did almost disappear. I just had new ones of feeling like a grumpy old woman and hot flushes etc but I stuck with it as my bowel symptoms went and I had no periods so no pain.

Following this I had 2 rounds of ivf including further down regulation drugs and what they called the long protocol. Out of both rounds I ended up with 3 eggs & only one ever fertilised but thankfully both went on to be a top quality day 5 embryo. The first one I had a transfer with but didn’t work and the second I froze not trusting my horrible womb environment. This was in March this year. After a withdrawal bleed and a couple of months later I didn’t come on a period again convinced the drugs had messed my cycles up I put off testing but after missing two periods and then planning on going for the 3rd round of ivf to get another embryo I ended up testing positive!! At first it was most concerning about if it was ectopic as nothing was meant to be able to implant in my womb as is was soo hostile.

Thankfully it wasn’t and somehow my little miracle had found some normal womb tissue to implant into and this was after 12 years of trying & having never got a positive test before. I am now 13 weeks and saw my adenomyosis/ endo consultant this week who is completely amazed and said I have defied all the odds. Not a worry free pregnancy by any means but taking one day & one scan at a time.

Just wanted to share my story and I never believed in miracles until this. ❤️💕

[TennisAM]

Wow congratulations!!

[Bespp]

Congratulation and thank you for sharing.

[Anndyz1]

Congratulations! So happy for you!