Decapeptyl + mental illness + migraines?

[1giantsleep]

I can't have any more laparoscapies and gynae says my only options now are Decapeptyl or a hysterectomy. I planned to get the injection but I keep backing out at the last minute - I'm worried about the side effects. Anyone here experienced having it while also having mental health problems and migraines? My mental health is stable for the first time in over a decade and I don't want to screw it up again. Also, I already get migraines 2 times a week ish and don't want that to get worse either. I'm also studying and I don't want my concentration, thinking or memory etc to be affected. It's scary that once you've had the injection, you can't reverse it. They've offered me the monthly one but I'm told that if I take it for a month then stop, the stopping it could destabilise me too. The gynae seems keen that I try it, but my own GP says I should weigh it up and it should be my decision. I really don't want to go backwards as I used to be in and out of psych wards, I've worked really hard to get to where I am now. But the pain and PMS impacts on me a lot as well. I just don't know what to do.

[AllthatGlitters]

Hi I am on the decepeptyl injection and had doubts about taking it monthly because I don’t like anything that goes inside my body. I previously had the implant and contraceptive injections and put on a massive amount of weights. I am on month 5 of the decepeptyl now, this is just until I get a date for a hysterectomy though. My symptoms before were very heavy bleeding through clothes and labour like pains. The pains have stopped and I bleed sometimes, hardly anything compared to how I use to be so all I can say is it’s been a positive experience for me. It’s meant to “mimic” what a hysterectomy would be like, if the injections work then a hysterectomy will be good for me. I can’t comment on the migraine sorry. I think we all have had some sort of mental health because of endo and adeno and the impact it has on our lives. I don’t think the injections have made this worse for me or better, probably the same. It’s a personal choice for you and it may benefit you or not, I would say the first month of the injection (first week was awful with bleeding and I thought what have I done) but that soon passed x

[1giantsleep in reply to AllthatGlitters]

Thanks thats really helpful. If I'm going to do it I need to do it soon so the first month is done with before I start back at uni. Eish, its like between a rock and a hard place. I have a severe mental health diagnosis so it's a bit scary. It's good to hear other people's experiences.

[AllthatGlitters in reply to 1giantsleep]

Yeah I get that’s it’s scary, we just don’t know what to do for the best do we with all of this. You will probably get lots of responses so good luck, lots of help on here 💗

[AllthatGlitters]

Forgot to add that due to the decepeptyl I take HRT and I feel so much better on that. Hardly any hot flushes maybe 1-2 a day, no night sweats now either x

[Endo_Jaded]

Hi, you could ask for Synarel, I am on this as it’s a nasal spray version and you spray morning left nostril, evening right nostril. If you have any side effects you just stop. You use add back such as Tibilone and it does take about two months to settle but I couldn’t touch other injections because of mental health and bone issues.

That is assuming you are talking about chemically induced menopause.

Many Doctors don’t seem to prescribe this as a first but in America many do as a first treatment since it can be immediately stopped. It has been used for IVF cycles also.

100% I wouldn’t recommend or suggest Lupron aka Prostap but that’s my own personal opinion, after conducting my own research for my legal dissertation.

Look up Synarel, it may be the answer but after struggling through a law degree, studying and endometriosis with other conditions is absolutely the worst, so definitely speak to whomever you study with such as disability student services or such for support.

Sending warrior hugs and hope it all works out better. I myself am on a long wait from 2017 til now still awaiting surgery and Synarel was the only thing with a transdermal pain patch that gave me 70% function back, still 30% daily pain.

[Endo_Jaded in reply to Endo_Jaded]

Also, I’m in NI incase it sounded like I was recommending an American drug. You do have to be firm though to get Synarel! But it’s works beautifully and immediately it just takes a little bit to settle like anything we start, I have one hot flush a week if that, but I do run temp sensitive anyway and moods have been fine, no dryness etc think my only actual menopause symptom is dry skin a little.

Just wanted to give you another option as I wasn’t until I read Dr Andrew Cooks book and then demanded I was given it due to the lesser impact it has.

Hugs again