Long time sufferer not coping well this p... - Endometriosis UK

Endometriosis UK

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Long time sufferer not coping well this past year, help.

TheCloud profile image
5 Replies

Hi, looking to see if anyone else is on Northisterone as a treatment. If so, is it daily non stop or a 7 day gap. Also anyone have the extreme swelling, pain, the cloud, hip pain, jelly legs, brain not function, nausea, fatigue at ovulation point. I am a 25 year suffer, this past year, am bad about 50 percent of time, 4 days bad, 10 days good and on and on and on. Ovulation time is now worse than actual period, feels like my whole stomach is trying to.burst out, am extreme pressure. My stomach swells out about 4-5 inches.

Am feeling completely desperate, I have coped all these years, left my job and started my own business to be flexible, but am finding I am now not coping. Please help, I don't know which way to turn xo

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TheCloud profile image
TheCloud
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5 Replies
SraB profile image
SraB

Hi. I take Norethisterone. Every day non stop. I take ik for extreme bleeding. It has completely stopped my periods, so it works for me. I do have side effects, mind fog, tiredness. I only take it until surgery (hysterectomy).

TheCloud profile image
TheCloud in reply to SraB

I have been on it over 12 years, but with a break each month. Was wondering anyone else and do you take 1 tablet 5mg twice a day.

Nikilll profile image
Nikilll in reply to TheCloud

I took last month Norethisterone (10mg) 2 per day I'm 26 years old.

SraB profile image
SraB in reply to TheCloud

One per day. Have you had a recent check of your ovaries? If ovulation symptoms have changed maybe something grew there (like a cyst).

BetterDayzAhead profile image
BetterDayzAhead

Hi I can PM you what has worked for me. I'm so sorry you are in so much pain. If you start a thread In my PM I will reply to you.

Best Wishes

H.

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