Hi,
I have been on a waiting list for laparoscopy with excision (cysts in uterus, adhesion between uterus and rectum/bowel) for a while after these were seen in my MRI and ultrasound. Thanks to amazing advice (thank you!) on here I’ve now managed to get my GP to refer me to a BSGE-accredited centre (no appt yet).
However, I was wondering at what point I can definitively say i have a diagnosis? Consultants have said ‘suggestive’ of endometriosis and adenomyosis, but no one has actually confirmed I do have it.
On one hand, I have been told that adhesions on the bowel are likely to mean deep infiltrating endometriosis , and that MRIs can detect endometriosis—that laparoscopies are not the only means. On the other hand, the consultant I saw previously told me he did not think it was deep infiltrating because, when he examined me internally, my uterus was mobile etc...
I know my eventual lap will tell me everything I need to know, but in the meantime everything seems so contradictory and with the return to office approaching, I want to feel I am justified in asking for work from home days and other considerations.
I’m really hoping the BSGE centre will be more helpful. Like, I haven’t even been sent an information pack or anything from my local hospital, and there have been inaccuracies on my letters.. just frustrating
Many thanks
L
I would say after a laparoscopy and the surgeon tells you for certain it is.Good luck!