Hi everyone. I just had my first proper consultation with an endometriosis specialist and after doing an internal examination and listening to my case history he found a thickened area of tissue and thinks I have ‘deep infiltrating endometriosis’ (or DIE as he wrote in big capital letters on my information sheet haha... that was encouraging!). I have to get an mri to get it diagnosed for sure and then potentially a laparoscopy although he said there would be a risk of bowel perforation with excision due to the location.
Does anyone have any experience of this type of Endo... I saw a few posts about it but would love to hear your stories/symptoms/how you are coping, especially if you are further along the journey than me.