Struggling to get follow up appointment c... - Endometriosis UK

Endometriosis UK

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Struggling to get follow up appointment considering private any advice

budgie12 profile image
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Hi I have posted before. Update I have had a pelvic ultrasound about a month ago and it has come back clear. I am now trying to get a follow up appointment to request for an MRI scan. Been told I cant have one until November. I am feeling really down and fed up of jumping through hoops. I just want to feel well and happy

My symptoms: Right shoulder and shoulder blade pain most days. Swollen feeling on my right side under rib cage . Tight chest and chest pains. Bloatedness. I don t really have heavy periods. I do get blood in my urine during my period. I feel like I have a blockage in my chest and sometimes its worse after I have eaten. These symptoms have been going on since last december. I have also had my gall bladder checked and that has come back clear.

Does anyone else get these sort of symptoms? Could this be diaphragmatic endo?

I can get a private GP appointment at a cost obviously or should I hold out for the already under pressure NHS. Help!!!!!!

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Roobs33 profile image
Roobs33

Hey, I had to go privately for my laparoscopy as I didn’t want to wait for months on end in pain and I was worried a large cyst on my ovary would burst and cause more problems. I have been chasing up the hospital as they said I would need an MRI to determine the severity of my bowel endometriosis but I have not been getting anywhere. I’ve left messages etc and no one is even getting back to me. I made the decision to go private this week as the waiting is definitely impacting on me mentally on a daily basis. I managed to sort out everything over the phone and will be scanned and have a follow up within the next two weeks. Unfortunately going private seems to be the only option for some. Me and my family have been saving since the last op as I had a feeling things wouldn’t happen the NHS route because of Covid. They are so overstretched and under pressure and some people are unfortunately getting fobbed off. I don’t have similar pain in the areas that you have it but if you feel as though something really isn’t right, you are the only one that knows so you should follow your instincts. The consultant that I found privately, also works at my local NHS hospital and is an endo specialist. Not that I’m getting anywhere the NHS route at the moment but it is always good to know that in the future this particular consultant will know my history and be able to help me. I wish you lots of luck and I hope you get some answers soon! Sorry for the long post :) x

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