Upset

[Gay333]

I feel so upset I thought we was all in this together. But when I put anything on here. I get ignored. I feel so alone my family didn’t what2 no. And the people who are going throw the thing don’t what to no

[angiecxx]

Hello my lovely. I'm sorry to hear that you are feeling ignored. I think at times we all feel lonely especially when people don't understand what we go through on a daily basis when it comes to having a chronic health condition such as endometriosis. Have you thought about talking to your family about how you are feeling and asking them to be more supportive and understanding when you are in pain and the other symptoms that come with endometriosis. 💛

[JOANNA901]

What problems do you have ? If you share and ask for advise maybe we can help ! I had endometriosis and adenomyosis so feel free to ask any questions 😘

[EndoJaz]

Yes it is lonely as nobody really gets it unless they are going thru it. I think the hardest thing I have found over the years is to trying to act like a normal person when I am in pain. I don’t want to be moaning all the time so I plaster a smile on when the kids come home and try to disguise what’s really going on. It’s so hard living with thisand have now been told to have menopause jab as they cannot keep doing surgeries on me. I am 45 so it may shut ovaries down for good. Just worried about the side effects. Sending love xx

[Pureunicorn]

Hi, sorry to hear your not having a lot of luck, sorry to say sometimes we all feel like this, I think we have all posted on here and not had a reply at some point, it's not a nice feeling, if there is anything I can help u with please message me xx

[Hidden]

Hi Gay, I'm sending you a virtual hug! This isn't easy stuff to go through.

Lately, I've tried looking for a local endometriosis group in addition to this one for the UK. I'm coming to realise that I really need a lady friend or two to chat with about health and the good things in life too - just generally more connection.

Forums are a great place to start, but while most of us are alone through the covid period, it's nice.... But not a full 3-D friendship with continuity. I want to hear the good news, the bad news, and all of it over time - on the order of months or years. 😉

Anyhow, those are my thoughts for the day.

[Moon_maiden]

HiI try to reply as much as I can, but recently it’s a tough time as well, but fully understand what you’re saying and it is hard.

Don’t forget endo uk have a helpline as well if you need to talk to someone.

Have you had a gynae referral and any support from GP?

[Simo7]

Hello try not to feel ignored, I’m guessing it’s probably also a reflection of the lack of support your feeling in daily life too. It’s not nice not getting answers to your queries. I think some of the other women have hit the nail on the head: There’s only so much support that we can get from these online chats. Maybe as the restrictions are starting to lift, if your able, try to join a local endometriosis group, that may help. Sorry I can’t offer any other ideas but don’t give up on asking for what you need in life, we all need to give & get love and support, it’s not easy on a daily basis sometimes without endo in the mix xx