Needing advice about intense pain

[smarieday]

I have had endometriosis symptoms since I began my period at 12 years old. They were heavy and unbelievably painful - in 2017 they made me unable to walk as pain travelled right down my leg.

With no other reason causing the severe pain I was adamant it was endometriosis. In 2018 after laproscapy I was told no endo was found.

Still in pain I was prescribed zoladex the past year and it’s been amazing with no longer being bed bound 2 weeks a month.

However a year and a half later i have a searing pain in my lower left abdomen travelling round my side and back. The pain constantly winds me and I was admitted into hospital after doctors were visibly worried and could see how bad I was.

Now all my scans -ultrasound and CT - have came back clear. I’m honestly at such a loss and I have no idea what is going on with my body.

My question is could I still have endo even though my lap showed no signs? Is there anything else that could be causing such intense pain that wouldn’t show on a scan?

Any advice on what to ask the doctors so we can continue trying to diagnose instead of just pain management?

So sorry for the long text and I appreciate any help

[endopositive]

The thing with endo is exactly as you said at the end, it is pain management. You can't always find endo and you can't always remove it even if its found. It took me a while to accept pain was now part of my life. I use Zalkya for pain management its the only pilled designed for endo sufferers and I have 50% of my life back. Good luck.

[vizzle_01]

Hello, my symptoms sound very much like yours severe pain since I started my periods (mine started when I was 10). What is Zoladex? I have never heard of it. I'm thinking about going to the doctors since coming off the pill after 15 years and having had several awful periods again but I feel like I may just have a diagnosis like yours - no endo (which is a good thing of course) but not feeling like I have an answer to my issues.