Hi all
Really hoping someone can help. I’ve been having rectal pain occasionally when opening bowel like a hot poker stick being put up that shoots me off toilet. With othe vowel changes and things.
However yesterday I noticed (I’m in middle of flare) that while I was walking I was having the same pains in rectal as if someone’s got a stick up there and it just shoots up?
Anyone else have this? Can it be endo?
I’m waiting for my lap but really nervous they won’t check everywhere ?
I sometimes experience this too! I’m so sorry you’re feeling this way. I’m not 100% sure it’s endo because I’ve never had lap but it’s worth mentioning. Stay strong!
Thankyou so much for replying! I’m waiting my lap too which is annoying as I don’t know whether it’s endo or not hope your well!
I get this too! It’s horrible!
I get this too! It is linked to endometriosis for me 👍it is so uncomfortable, it stops me in my tracks. I describe it like a red hot poker too! Hope you get your LAP soon x
Omg I feel for you Thankyou for your reply it really helps other people! Yes I used to only getting during bowel movements then this flare up it’s even been while sitting or walking... but the same pain! During my pre op I’m going to make sure that they check everywhere! Did they remove yours?
Happy to help, it's good to know other people's experiences are useful.I also get it when sitting down and walking. If I hold a wee or need to have my bowels open or pass wind it is worse.I am on the waiting list for a hysterectomy and ovaries removed as I have stage 4, Deep Infiltrating Endometriosis and adenomyosis and an endometrioma.
Yes definitely mention it during your pre-op xx
I experience the same pains going to the toilet but over the last few months I’ve developed a constant ache / throbbing in my rectum. It’s literally there all the time but gets worse around ovulation/period
I have bowel endo and have had two previous bowel shaves so would say it’s related
Sorry to hear that ! Mines not constant as of yet but notice with each flare up (average twice a month) they get more consistent and frequent not just with opening bowl b intense shooting if walking or sitting etc. Hoping to get lap soo. Do I have to ask surgeon to look on bowel?
Have you had a laparoscopy already? They generally check your bowel / pouch of Douglas / surrounding area as standard as the organs are literally touching each other so its standard practice. X
Hi yes and yes I had all these. More so leading up to my lap surgery. This was due to me having Stage 4 endo, and having endo in my bowel too. My surgery went successful in Aug 2019. But sadly after catching covid in Jan 2021 I started experiencing the same pain again bowel movement pain and also mini flare up where I am struggling to sit on a chair because my bowel is aching I normally use a hot water bottle and sit on it as the heat comforts the pain. I have been told by my consultant just last wk that she definitely believes endo has come back and that she does not want to do anymore surgery on me yet till I have completed my family but the sad thing is I'm 32 and still haven't found anyone. So she has given me two options coil or double dose of the pill to drop my periods so the endo does not continue to grow and become painful. There was 3rd option which was harsh hormone injections to get me having early menopause but because I want to have kids we had ruled this option out. z
Sorry to hear that! I’m currently on double dose pill as I refused coil and refused those injections also as I’m only 24 don’t really want to be experiencing early menopause! I just get pains in bowel as shooting pains not a constant pain while having flare up could it still be that it’s in bowel?
yes, I get mine as random and at times after finishing opening my bowels previously before lap it was due to having deep endo in my bowel after surgery I had no issues. But since Jan 21 it is now more shooting and same as before I describe it as a pole being pushed in me. It's horrible and let's not start with period times its so painful I black out at times. Mine is during flare up and off flare up.
I also chose to have the double pill than the other two. I'm 32 and was diagnosed with endo first time when I was 28. I only experienced the pain for 4 days before getting diagnosed so I have not been through pain all my life.
Yes the pole thing sounds soo familiar. I always say to my partner it’s like someone’s got a fire poker stick and shoving it up!! Literally makes my body jolt. I haven’t had my diagnosis yet just suspected but been diagnosed with adeno. I’m so nervous they will say there’s nothing there but sounds very similar to your pains!
Awww don't be nervous babe. I always say it's better for them to find something than leaving you feel like your just experiencing invisible pain. I dont know if its just my body but the pain for me is horrendous that where ever I am I could be standing and the next I have fainted on the floor.
It really does feel the same like a pole and I know it only last for a few seconds sometimes a minute but it's too much to deal with. I was diagnosed through having a transvaginal scan then agreed to have my first surgery. The pain for me does elevate to my uterus too and again It feels like having a transvaginal scan but having the probe left in me.
Use a hot water bottle for temp comfort, I also use the tens machine when it gets too much and for worse flare up I take cocodamol 15/500mg dose. which subsides the pain completely.
I recently started taking up walks I don't need to lose weight as the endo flare up makes lose weight drastically but I have noticed less bowel pain when I am doing 1h to 2hrs walks.
If you want to talk more or ask me anything I'm always here hun. But try and not stress. x
Yeah I’m more scared they won’t find anything and I wont have an answer to all this pain yeah I’m on tramadol for pain. My ultrasounds never show endo. But then I had 3 scans in space of 3 days in two different hospital due to being admitted and each result was different soo... I started running last year during first lockdown but used to make me bleed was so strange but can defo try longer walks! I wanna try anything that could possibly help Thankyou so much really appreciate it same for you drop me a message anytime and I wish you all the best in your journey x
Try the walks and see how you go. Make sure you have comfortable trainers.
Have you had a transvaginal scan because I was diagnosed through that. x
Yes several.. that’s how my adenomyosis was diagnosed. I had three in jan writhing three days of each other at two hospitals... and 3 completely different results x
Yes, suffer from this too. Turned out that I had a fissure (small tear) from constipation issues due to endo. Maybe best to get checked out? Good luck x
Yes I defo will Thankyou hope your okay now x
Not really 
Been on estrogen only HRT for 5 years since hysterectomy. Think I still have endo on my ligaments (which I didnt realise wasnt excised during surgery) so I've basically been feeding the endo with the HRT. Eventually have a referral to a specialist centre and video appointment in a couple of weeks. That's only taken 7 years since first diagnosed; 25 years since first issues.... It's a constant battle x
Thank you, you too! Hugs xx
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