Coming off prostap : Hi this evening it... - Endometriosis UK

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Coming off prostap

Bethrussell profile image
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Hi this evening it appears my sciatic nerve in my left leg has decided to trap and I can barely walk or put weight on my left leg. Iv just come off Prostap and it seems my symptoms are worsening again. Anyone else experienced this?

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Bethrussell profile image
Bethrussell
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Imyogi profile image
Imyogi

Hi Beth, I’ve been off it for 3 months nearly. I haven’t had nerve problems, my severe pain and stiffness from the injection have eased but my Endo pain is back with a vengeance and already been to a&e once. They’ve put me on tramadol. It’s stopped me from needing to go back to a&e this far but no where near stopped the pain. Have you spoken to your specialist?

Bethrussell profile image
Bethrussell in reply to Imyogi

I don’t have a specialist, the gp and gyny are writing letters to each other and I can’t get an appointment because of Covid! It’s terrible here xx

Imyogi profile image
Imyogi in reply to Bethrussell

I feel for you, I’ve been in agony everyday this month and they’re only suggestion is to go back on the Prostrap injection. That isn’t a long term solution when I’m supposed to be having ivf soon. I’ve tried getting an appointment with my gynaecologist that I was seing before and nothing yet either. It gets to a point where you just feel ignored doesn’t it!

I hope you get an appointment soon hun x

Hi Beth - I came off Prostap one month ago and last night I had intense pain in my lower left hand side radiating down into my left leg. I went to the walk-in-centre toady and they said it is sciatica. Did you have any other symptoms when coming off Prostap? Also did you ever take/ continue to take HRT?

Bethrussell profile image
Bethrussell in reply to Dreamingatthestars

HiI am back on it now, I just remember all of my symptoms flaring up and being in agony. I had no hrt as was advised that this would counteract the prostap. So really enjoying these hot flushes in the hot weather 😆

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