Stressed & struggling : Hi everyone. Sorry... - Endometriosis UK

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Stressed & struggling

lorraine1981 profile image
•8 Replies

Hi everyone. Sorry to moan, but this week has been so stressful. Spoke to endo consultant and forthcoming hysterectomy has now been delayed by between 6 & 12 months due to covid 😥😥. More zoladex injections & there side effects for a further 6 months after already having 6 months worth of these awful injections. More pain relief too, as I have endo on my nerves & pelvis.. i wish this covid would do one now 😥😥

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lorraine1981
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AllthatGlitters profile image
AllthatGlitters

Hi so sorry it’s been delayed for you. Hope the months pass quickly and you get your op soon. Covid really is interrupting other surgeries now. I see that cancer operations have been cancelled too, awful 😢

lorraine1981 profile image
lorraine1981 in reply to AllthatGlitters

My surgeon is only doing emergency operations. Just want covid to do one now xx

AllthatGlitters profile image
AllthatGlitters in reply to lorraine1981

I know 😢

Lou93 profile image
Lou93

Hi sorry to hear your surgery is cancelled was it on the NHS? I hope you don’t mind me asking I have a hysterectomy booked in next week but it’s private so not sure if that makes a difference.

I’ve been on zoladex like you for 6 months with HRT and just hoping it doesn’t get cancelled xx

lorraine1981 profile image
lorraine1981 in reply to Lou93

Yeah mines on the nhs. I can't afford to go private

Lou93 profile image
Lou93 in reply to lorraine1981

Oh I hope they can book you in for it soon🤞 I wouldn’t be able to either I’m lucky that I get cover from my work.

leah1908 profile image
leah1908

Hi, Sorry to hear of the setback with your op. Would you be able to send me a private message with the name of your endo consultant? I’m really interested to know how they diagnosed endo on the nerves. I struggle with a lot of health issues particularly my nervous system and would be interested to know how endo affecting the nerves is diagnosed. Thank you in advance for any information 😘xx

Chicken2012 profile image
Chicken2012

Hi Lorraine , I’m in the same situation waiting for a hysterectomy , having decapetyl injections had nearly 12 months worth. Surgery estimated for March but I reckon I’m in for a longer wait. I hope you get your surgery soon.

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