Advice

[Hayleyx07]

Hey, was just wondering if someone could help. I had my diagnostic lap December 2019, where mild endo was found in pouch of Douglas and uterosacral ligaments. The doctor said he didn’t remove the endo because ‘it would cause more trouble than its worth’ and I was supposed to start gnrh analogue but due to covid I couldn’t and was put on the mini pill until after lockdown. I had a 6 month check up phone call with my gynaecologist and he said I had to start the gnrh analogue and would make me an appointment in 3 months for him to do them monthly. I finally got the appointment for today but due to lockdown cancelled last minute. I had a call instead where he said the mini pill is fine to continue and he doesn’t need to see me anymore if I get worse to go see my gp and hung up on me. I’m so confused and devastated, I’m still in pain, I’ve had no actual treatment/pain management and the endometriosis has just been left? What do I do now? 😭 I feel so deflated, I got a diagnosis and was just left to deal with it. Should I get a second opinion? Or just continue the mini pill. I have had so little information on endometriosis, so little advice. 😞

[Prettythings1]

Oh that sounds very frustrating I would keep ringing your gynaecologists secretary to get more information or at least a telephone conversation with your gynaecologist you deserve answers I hope you sort it xx

[Jo2201]

Back in June I went to hospital as have endo only took 20 yrs to get them to listen that something was wrong (runs in family 3 generations) i was put on monthly zoladex implants to put me in temporary menopause for 3 months then go back and discuss having ovaries out its now January and not heard a thing from the hospital to go back see how its going but I don't mind too much as all pain has gone which my husband is liking hope you get answers soon but might be worth seeing if your gp can push things along or at least get a treatment plan sorted as I found the pill only worked for a short while before all the pain came back.