Hi all! Potential Endo?

[ThatGirlJJ]

Hi all!

After a year of doctors appointments and being told different things, by different people, I've been told today that my symptoms coincide with endo. Originally, they thought I was suffering with Crohns Disease, which made sense to me because I have the coil, and all my symptoms are to do with my bowels.

After a conversation today with my doctor, who has consulted a gynaecologist, they think that the coil has lessened/controlled the symptoms in my womb, but I have other symptoms/flare ups. I'm just wanting some proper answers, I'm in pain all of the time, lower back/stomach mainly, and have a lot of bowel issues. They've tried different kinds of diets (currently i'm gluten free/soya free/milk/egg free), but hopefully now they're looking at this I'll get some answers?

They've put me on the mini pill alongside the coil, and have referred me to a gynaecologist for further tests. Obviously I could be waiting a while, with the current state of things, but here's hoping.

Tell me your stories? Share some tips?

[Moon_maiden]

Hi hopefully things will start to improve for you 🙂What pain relief are you taking?

If your GP hasn’t arranged an MRI it’s worth asking to cover pelvis and abdomen. This may save time before seeing gynae. Biggest tip is never ask, tell them what you need, less risk of fobbing you off 🙂

I was diagnosed Dec 19 with endo after fibroids showed on ultrasound and saw gynae privately. Endo doesn’t really show well on scans unless experienced, ultrasound isn’t a great method, MRI bit better.

It’s unlikely you’ll see an endo specialist to begin with. It’s one reason to have MRI ASAP as this can show endo sometimes to get an idea of where, etc. Its better at showing conditions and puts you in a better position to see the right consultant, whether endo is there or not.

The endo UK site has amazing info for consultations and a pain/symptom diary, include notes from years back. Consultant asked me when I started periods, had to think back a very long time 😂.

The forum is fantastic and I’m sure you’ll get lots of help 🙂

[MadsLxo]

Hey! I’m currently going through the same sort of thing! I’ve been complaining for 18months/2 years and it took me quite literally screaming at the doctor down the phone to get a referral so hopefully I’ll have an appointment booked soon (covid permitting). It’s so frustrating though and I feel the same, I just want some answers. I have really bad thigh and pelvis pain from ovulation to my period in my right thigh always, it just feels like it’s being crushed along with about 8000 other symptoms including bowel symptoms! I also have a cervical ectropian which I’m not sure is linked to endo? I only started getting symptoms when I came off the pill (which apparently masks symptoms as you said above also) and went on the non hormonal coil. I’m so anxious though that when I get to my gynaecologist appointment I won’t be taken seriously or they won’t be able to find anything, it’s starting to keep me up at night. We’ve got this though, atleast we have that appointment that’s a glimmer of hope right? Fingers crossed you get some answers