I was admitted to hospital, with stroke like symptoms, I feel Norethisterone may have contributed it.
I am on the road to recovery, and regained g speech back and slight weakening of the right side.
Apologies for writing mistakes and wording, I'm struggling to this of words.
I have stage 4 endo
I just want to know if anyone, felt swollen, an swelling in legs, hands face, had headaches and migraines, legs feeling heavy led like and full of pressure, water retention?
I have had a urine really bad infection. Which i have been to the doctors over and over again, constantly complaining, I want to come off Norethisterone. I thought my urine problem was due to endo pressure on tbe bladder, and was re referred to urology. I have been getting sicker and sicker, only to be told to wait to see the consultant. Consultant I rang a few times and gave up, with no help or no idea what to do.
I ended up going to out of hours to get help, twice! First time through GP service, which he requested a sample. Sample was contaminated. It took GP 3 days to tell me that, but I couldn't take the pain any more and ended up in the out of hours and got treated for the infection straight away.
My body swelled, I had water retention in my feet, ankles, hands, eventually my neck head.
I was still taking Norethisterone. I stopped Norethisterone I asked for a face to face and al the doctor could advise that I write my thoughts down, and wait for appointments. Apparently due to covid appointments are not happening.
I got lots of headaches and migraines, prior to getting really ill and don't know why I got stroke like symptoms, called Bell's Pasly which is a facial nerve virus, causing my face to drop on one side.
But now I have weakness on right-side, which will go in time.
Gynae have been unhelpful, I have been left depressed and sadden, angry.
I'm sorry for the rant, but need to heard other peoples experiences.
I am unable to see a endo specialist, has apparently some are not taking new patients. (Only at one specialist hospital, I cannot speak for the rest).
I'm still in hospital, getting more tests done, has I feel weak on tbe right-side, and my functioning and coordination isn't brilliant.
I do feel now, that People with diagnosied Endometriosis, should only be seen by specialist of this disease.
Not my gynaes who specialises in other areas.
I am upset and needed to vent. Apologies to you all.