Could I have endomeriosis?

[Emily10]

Please help

Awaiting an appt on a very long NHS waiting list. I had a late term pregnancy loss in May which had to be brought on using misoprostol. Following this I had endometrial thickness for some time accompanied by pain and constant bleeding which lasted about 8 weeks.

5 months on i am in a normal cycle again, a bit shorter than it was before. I have a persistent on and off pain in my pelvis which worsens when sat down and for some time after. I have had PID ruled out due to lack of infection. I have no other symptoms beside this but feel I am getting brushed off by every doctor I see.

Just wondering about endomeriosis: has anyone had this with this as their only symptom and normal periods? Starting to get really worried.

[Emily10]

My last scan was in July and found normal endometrial thickness. It also showed a fibroid but this was only 1mm.

[Moon_maiden]

Symptoms vary so much with this condition. If it was an ultrasound endometriosis won’t always show. It’s good you’re on a waiting list, let them know if you’re available at short notice for cancellation, that’s is if you can and don’t mind covid. There will be people that cancel.

I had three fibroids show on US, at lap and on MRI became numerous.

The endo UK site has some great info for tackling consultations with GP and consultant.

Take care 🙂

[Emily10 in reply to Moon_maiden]

Thank you. Gosh its so frustrating! Do you know if cysts are a sign that endo is present?

[Moon_maiden in reply to Emily10]

I’m not sure about cysts, I haven’t knowingly had any so far. Although gynae could only see one ovary at lap and none show on scans.

I believe that chocolate cysts are endometriosis, but not totally sure. Hopefully someone will have more experience of this

[Ainp]

Hi Emily, this also happened to me this year in March. I thought it was a urine infection and then chronic pelvic and groin pain for months, with no pain killers touching the pain. They believed it was PID (despite no infection) so I was treated for this several times and each time it did not work. I got ultrasounds, both came back clear and I have seen a gynecologist who believes it could be endo. I really do feel for you as the pain has returned again for me and I wonder if it will leave again... I hope you feel better soon but I wanted to let you know you’re not alone. Thank you for sharing your story, it helped make me feel a little less lonely in this journey x