Dizzyness and endo? : Hi i’ve got stage... - Endometriosis UK

Endometriosis UK

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Dizzyness and endo?

Milla1 profile image
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Hi i’ve got stage 4 endo and multiple cysts and have just been diagnosed with vestibular migraines😢 Main symptoms are extreme dizziness and sickness. To the point where i am bedridden. The doctors are unsure if it is related to the endo or adeno or if it’s just a coincidence. Has anybody else been diagnosed with this or experience extreme dizziness? if so any recommendations as to treatment or drugs? Would appreciate any input...

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Milla1
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2 Replies
EndoJaz profile image
EndoJaz

I have just had endo removed 2 weeks ago. Back in July I passed out and went to hosp as left side went numb and that was the diagnosis.. vestibular migraine so maybe there is a link. I passed out again at the weekend and came round with pins and needles but no numbness this time. It’s horrible. X

Bethleah profile image
Bethleah

I get dizziness linked to Endo but ruled out vestibular migraines. I went through physio and ent. Ent physio may help with the migraines. Unfortunately I have yet to find anything helps with the dizziness after 7 years. I do know some things make it worse. I tried drugs too but no effect. For me hormone drugs make it worse. Cranio sacral massage may help see an osteo who has trained in it. Not on nhs though. X

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