Microscopic Endometriosis/Adenomyosis

[MegVarny]

I was diagnosed with Endo about 7 years ago and nothing has helped (pills, Mirena only for a short amount of time, CBD). My symptoms are severe and after an operation with a BSGE Specialist in October, no Endo was found. I went to another BSGE Specialist who diagnosed me with Microscopic Endometriosis. This basically means that the disease is so small it cannot be seen during surgery. He also said I could have Adenomyosis

It is very frustrating as it means unless I use hormones, my pain will always be there as the disease cannot be cut out.

I try natural things for my pain like following a GF, vegan diet and am looking into reflexology and acupuncture, but it feels like nothing helps.

Has anyone been diagnosed with microscopic Endo or Adenomyosis?

[a_leck1]

I thought changing your diet would help a bit. I heard about a tablet called visanne, it's not available in the UK but women in the US use it. I'd say do some research on it cause it might help

[MegVarny in reply to a_leck1]

I mean it does help with the bloating but not so much the pain. If I eat certain foods then my pain and bloating increases. Thank you - I will!

[TennisAM in reply to MegVarny]

a_leck1 Visanne is available here now (first available Feb 2020), the generic name is dienogest (brand name Zalkya). My GP told me they'd issue it if my consultant wants me to take it.

I've done a lot of research on natural things that work for endo and adeno. Send me a private message if you want the info xx

[Hidden]

Hi,I'm a bit to reply - but sounds very similar to me.

I've had endo removed twice but operations after that show nothing - despite being in pain.

I am assuming the reason for my pain is adenomyosis as a TVU scan showed years later something in the wall of my womb. It doesnt seem right that technology has not been advanced to help woman like us in pain and dont have very obvious disease.

Take care x