Recommendations for Endometriosis Surgeon... - Endometriosis UK

Endometriosis UK

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Recommendations for Endometriosis Surgeons in London for The most SEVERE grade 4 endometriosis?

AuntieMandy profile image
4 Replies

Hi all.

I suffer from grade 4 SEVERE endometriosis which was discovered in 2010. I have had several HUGE Surgeries to remove it including a few with bowel surgeon and bladder surgeon working together joint with my gynaecologist.

I have been on Prostap injections for SEVEN years and Mirena Coil with no one really monitoring me, but I was well.

I had the coil removed and stopped my injection one year ago to Egg collect and now I find myself now with horrific back and ovary pain and apparently I have fluid on my pelvis too (I paid for a private scan)

Can anymore please recommend in their experience, THE BEST private Endometriosis specialists in London that are excellent with the MOST SEVERE vicious endometriosis?

Many thanks for all xx

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AuntieMandy
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Marcia71 profile image
Marcia71

Sorry but we can’t discuss surgeons on this page but you need to be seen by a BSGE clinic as you have such severe endo. If you go to BSGE website you’ll see all centres in London listed. I know the King Edward VII hospital is a private hospital and is an a credited BSGE centre.

AuntieMandy profile image
AuntieMandy in reply to Marcia71

Hi Marcia, thank you so much for your reply.

Whig is a BSGE centre?

I was hoping people could private message me to my inbox, with personal recommendations of good surgeons they have used with good results.

Thanks so much x

Marcia71 profile image
Marcia71 in reply to AuntieMandy

Best to re word your post as I’m sure they will.

BSGE stands for British society of gynaecology and endoscopy. But in reality it’s endo specialist centres and if you have severe endo - stage 3 or 4 you should be referred to these. They are tertiary centres and you get referred via nhs England to them.

Www.bsge.org.uk

AuntieMandy profile image
AuntieMandy in reply to Marcia71

Thank you so so much x

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