Coccyx pain?

[Kimbad1990]

Coccyx pain?

Does anyone have a pain in their coccyx with Endometriosis? It comes and goes for me, but a sharp ache and almost feels bruised?

[Anon1846]

Yes I get this, it's a constant ache though. You can buy a cushion to help with the pain online, they are supposed to help however I haven't gotten round to getting one and trying yet! I read in "the doctor will see you now" for endometriosis that it can be a symptom of endometriosis especially in the later stages

[dasprior in reply to Anon1846]

Yes - horrible. My oesteopath gave me some exercises and showed me how to release the pain points which really helped. Some days I get “stuck “ and it can take 30secs to even stand up out of a chair.

[Becksdk]

Yes I sometimes suffer with pain there too, I have stage 3 endo on my uterosacral ligament and I know that’s fairly close to the coccyx area and if I sit for long periods of time upright it gets really sore!! I just try and move about and if it’s too much to bare I take a pain killer and rub some deep heat on.

[Hidden]

I have horrendous pain in my sacroiliac joint mainly, but I have constant lower back pain .

[Kimple123 in reply to Hidden]

Hi. Iv had coccyx type pain for 3 years. Had steroid injection which lasted a while. But the pain I was never convinced it was the actual coccyx ! GP wouldn’t listen! I was referred to colon rectal consultant who identified some nerve damage and not feeling the urge when need to go to loo. Also a slight pocket in colon which gives me constipation now and again. But as for the pain has referred me on to a gynae consultant now! For endometriosis! Iv lower back pain every day. And the stabbing pain below is so much worse around menstrual cucle. My periods are wild this past year. Hormone fluctuations and bleeding like no other. But GP originally wasn’t interested in that. I’m 42 and felt like had been written off! I had post natal depression 7 years ago and am susceptible to bouts of low mood and anxiety when under pressure or stressed.

Any feedback would be great. I’d love to know if anyone had similar symptoms to me. I’m worried sick and just want to know what it is so can deal with it.

[luthien]

Yes, I had it a while ago and thought I was going crazy! It's actually really common not just for women with endo but us generally as our core muscles are weak, this makes our lower back compensate which changes our posture by milimeters which can make all the difference.

My lower back pain was always present but the coccyx pain only showed after my laps and during my flare up days.

I replied to a lovely lady a while back querying back pain too; my physio says it's all related, explanation in the post!

healthunlocked.com/endometr...

I'm having regular monthly "maintenance" physio to help with my lower back and coccyx, which is going well, I now only have a slight ache during the first day of my flare ups.

It's not a quick solution; it'll take a bit of time with physio, core exercises and strengthening your back which may mean some at home exercises (google core strenthening). I started to notice improvement after two months. Physio works on the lower back, sacrum, hips and coccyx mobility, as often that whole area can be tight.

My GP just said try steroid injections or have coccyx surgically removed, didn't mention physio so I had to look up ones locally myself, but it has helped so much.

x

[StefaniaJW]

Do you suffer from utero-sacral ligament endometriosis? Do you do a job where you sit a lot or do you tend to lie on the couch with your head up? The last two are common causes of issues with the coccyx. I had the same issue and saw an osteopath

[Kimple123]

Hi. So 3 years I started feeling like was sitting on a tennis ball. Horrendous after about 6 months and I went private and to spinal surgeon who injected steroid into coccyx area. It went away for 6 months and returned with vengeance! Doc then sent me colon rectal consultant as my bowel habit la had changed. They discovered I’d had damage after birth of son 7 years ago and some nerve sensation had gone. And Iv lost sensation to push slightly hence why I get constipation now sometimes. So this pain...I get it really really bad around menstrual cycle. Stabbing sharp pain in backside!!! It’s sore when I’m constipated but no pain going to loo or anything. More like the poo puts pressure on another area that causes stabbing. I now have lower back ache. And otherwise I’m fit and healthy (anxiety/stress) with loosing our business during COVID) but otherwise healthy! Iv recently seen colon rectal consultant again out of desperation. He’s referring me to gynae consultant to look at possibility of endometriosis. I feel like Iv been on a wild goose chase! Other than symptoms above, I get hip pain sometimes too. Like the pain resonates right round the back and to my hips. It eases once I’m up and about but the stabbing pain can come even if I attempt yoga in the living room! Like something catches inside and can irritate it. Very painful.

As his can tell I’m worried sick. My GP did full list of bloods at my request. All were fine. And I’m about to do that poo test to detect blood.

Amy ideas or stories of similar symptoms with anyone else id be grateful to hear.

K

[PaoPetite]

Hi darling,

Yes I have it too! This is part of Endo suffers nightmare, in my case Endo nodules form in my rectum and when swollen affects the nerve in my back hence the pain there, sometimes I have pain in my legs too. All depends where Endo is found...

Sometimes cold or hot pads help to ease the pain, but only sometimes. I hope you find something that works to ease the pain.

Sending you virtual

Hugs 🤗