HELP NEEDED-next steps for treatment after diagnostic lap for endometriosis

[Pinkelephant27]

Hey! Sorry for the lengthy post- I’m confused and worried and could do with some help..

I had a diagnostic lap in April this year which determined I have stage 3 endo (basically everywhere except my ovaries and Fallopian tubes) no excision was carried out during the lap. Following this my doctor prescribed me hormone tablets which I bled through and was taken off after 8 weeks, my doctor then gave me the option to either come off everything and try to get pregnant (I’m already extremely worried about my fertility) or to have a monthly hormone injection to put me into medical temporary menopause, I felt both where options I didn’t really want but stayed off everything (without being prescribed pain relief) as I felt like that was my only option whilst I made a decision. My pain has got considerably worse, I can’t eat or drink anything without being so bloated and uncomfortable it makes me sick, I’m constipated, in pain, my bladder has got really weak and I’m so scared of the endo growing more.. I’m back in at the hospital on Thursday (7th November) and I really don’t know what to do, I’m feeling really anxious and down about it all, can anyone help? 😭

[LH38]

Hi, sorry to hear your feeling anxious. I know how you feel as many on here do. Can I ask are you back in for a laparascopy on the 7th to remove endo?

I was told you have to be on a pill or injections that put in menopause or endo will get worse. I had laparoscopy to become pregnant. I could have gone straight on a pill/ injections to extend times between endo problems. The injections although put me in menopause and I thought was great compared to my symptoms but once injections are stopped your body and cycles return. I'm no expert. I'm on here reading the mindfields of having a hysterectomy as I've been on the waiting list since march this year. Not sure what is the best solution. Such a tricky problem. Laparoscopies have helped me in the past.

Good luck to you on the 7th xxx

[Pinkelephant27 in reply to LH38]

Thank you for responding ❤️ No I’m just in for another consultation, he was going to leave me until after Christmas to see if I magically got pregnant but I’ve pushed it forward because the symptoms have got so much worse! My doctor hasn’t really mentioned excision surgery he seems to really want to go down the hormone route or me trying to get pregnant.. I think I’m just scared of the side affects on the injection aswell, I just don’t want to make my situation or fertility any worse than it already is 😬

Good luck with your wait, fingers crossed it’s not that much longer for you xxx