New here and needing help: So I've had... - Endometriosis UK

Endometriosis UK

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New here and needing help

TeddyCat15 profile image
3 Replies

So I've had symptoms such as bloating cramps and really painful heavy periods etc for as long as I can remember. I had son who died and the symptoms got much worse. I developed at of bowel problem which the GP just put down to IBS. Year I had my daughter by c section and since them the pain is taking control of my life. My scar becomes so so painful especially leading up to my period which then seems to peak and gradually become easier. When it's bad it's awful. My belly bloats and feel like I've been stabbed or literally feels I've had my c section a few days prior... I've been to GPS who just tend to blow me off. I actually had a scan with the consultant who delivered my daughter last year and he's the first person he listened to me. He said himself he thoight it sounded like endometriosis. He got me in for a scan within the hour and they found a mass they are unsure about. They said it could be endometriosis and want to call me about in for another ultrasound scan in a few weeks. But I feel like I'm going insane. I feel exhausted and like I'm going a bit mad. Bit lost waiting around now. Currently writing this at 3.30am sat feeling glum with my cat after being sent home from my night shift. Had anyone been in a similar situation and could offer me any advice or support on what to do.

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TeddyCat15
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Felma profile image
Felma

Kindly ask your doc to check if there is endometriotic nodule or mass beneath the section scar.Where is the mass you mentioned?

TeddyCat15 profile image
TeddyCat15 in reply to Felma

Thank you for your reply, sorry I've only just picked it up. Following the original ultrasound they booked me to in have an MRI scan which is tomorrow. You can feel the lump all the time but it's most painful the week before and after my period. During my peirod the pain is nearly unbareable. I'm just worried tomorrow that because I'm not within those times it might not show up or they dismiss it.

Lynne_support profile image
Lynne_supportPartnerEndometriosis UK

Hello TeddyCat15.

I'm so sorry to hear that you are struggling at the moment. If you feel like it would help to speak to someone, you could try phoning our Helpline. The Helpline is staffed by volunteers who all have experience of endometriosis, they can offer support, information or just a friendly listening ear.

The Helpline number is 0808 808 2227, opening times can be found on our websiteendometriosis-uk.org/helpline.

Best wishes

Lynne - Endometriosis UK

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