High ca125 and endometrioma

[vickyruss87]

Can an endometrioma raise your ca125 levels?

[L2213]

I had a ruptured endometrioma and my ca125 was really high, I think it was around 1800 when I was in hospital with severe pain - I had it retested a few weeks later and it had gone down to 90 the consultant I saw said it can be raised by any inflammation x

[vickyruss87 in reply to L2213]

Thank you, thats really reassuring x

[BoilerMissle in reply to L2213]

This is the first time I’ve seen anyone with a CA-125 that was as high as mine (1826)! Luckily I didn’t know how high it was until AFTER my surgery, but all was fine. Lots of things cause an elevated CA-125 - Endo, fibroids, menstruation being among them. Don’t panic!

[Hidden]

I was told at the hospital that endometriosis can definitely raise your CA125 levels xxx

[Endo_This]

Hi 👋🏻

I had a test which had raised ca125 marker which concerned my GP (he has little understanding of endometriosis) so I was sent for a pelvic scan. I wasn’t worried as had had excision surgery around 18 months before and was told that my ovaries were good.

Anyway, my ovaries were fine on the scan so I was advised that without the presence of any masses on my ovaries that the high ca125 was down to inflammation caused by endo (probably!)

Hope that helps.

[wanwood]

Yes, CA125 is not considered a reliable test for cancer in pre-menopausal women because it can be raised by endometriosis and other things. I had a raised result caused by an endometrioma and other endo. Having a raised CA125 can be a good thing because it can speed up how quickly you get seen and progress through the initial steps until they exclude cancer! xx

[StefaniaJW]

In some endo sufferers it is high, in some it isn't. CA125 is not a diagnostic tool at all, doesn't work and should not be used by phycians. I hope that makes it clear

[BeachSheller]

I sure hope so! Mine is raised at 165, and I have what they think are 6.7cm bilateral endometriomas on both ovaries. Surgery is in a few days to have them removed (along with a hysto) so I’ll know for sure soon.