Has anyone got any stories of endo on diaphragm and or lungs?

[Kelly3322]

Hoping someone can share some info with me

[EndoN]

There is a girl on Instagram that has pelvic and thoracic Endo. You might find it helpful.

Her account is @yellowbowsxo

Her webpage is yellowbowsxo.com

[AkiBoo]

Hi, Kelly3322

Do you suffer from endo on these areas?

I have on diaphragm.

[Kelly3322]

Thanks for the replies ladies. Yeah I've got it on my diaphragm had surgery last year awaiting another surgery this year.

What symptoms do you get with yours?

[ckhane]

Hi I hope that you are doing well! I have endometriosis covering my diaphragm in more then 10 places. Sometimes endometriosis on the diaphragm will have no symptoms. The symptoms that are most common and that I experience are pain along the lower portion of the rib cage and right side, feeling breathless or like you can’t take a full deep breath, and shoulder and or neck pain. These symptoms can occur on the left side as well but that’s rare. I haven’t decided if I’m going to have surgery to remove it or not yet as they have to deflate the lung to see it from both sides. Is the upcoming surgery to have it removed? What kind of symptoms do you have?

I hope that you are doing well!

[Kelly3322 in reply to ckhane]

This will be surgery number 5 for me but only diagnosed with it on my diaphragm last year during surgery. I get horrendous pain in my shoulder blade and shoulder tip. Pain under my ribs radiating to my back and middle of chest it hurts to take a deep breathe and get comfy in bed. Along with the endo in my pelvic area and everywhere else I'm completely fed up of this invisible disease.

X

Hope you're keeping ok.

[Kelly3322 in reply to Kelly3322]

I forgot to say my pains in shoulder have always been and always are right sides but this last week ite been left rib and left shoulder pain central chest and then right shoulder tip pain. X

[mfdez]

Hi,

I have stage 4 endo. Both my lungs collapsed at different times. My chest doctor thinks it is because of endo in the lungs but in both surgeries, they did not find any endo tissue. Still..everytime the collapse happens, it happens when i have my period. it's all a big interrogation mark when it comes to this disease.....