Missing uterosacral ligament: The full... - Endometriosis UK

Endometriosis UK

71,320 members52,393 posts

Missing uterosacral ligament

Janeyd27 profile image
2 Replies

The full story is very long and I don't want to go over it just now. But I have adeno and have/had endo. Lap today showed no new endo or adhesions which was a surprise as that suspicion was why they wanted to do it. It confirmed womb has adenomyoyic appearance, backing up MRI and my symptoms. What has really knocked me for six is that they were looking for endo of the left uterosacral ligament as this is tender and shows as thickened on scans and I get bad back and leg pain on left. Post op they've said it appears thick only because I don't have a right one...at some point it has been removed?! And nobody thought to ask if they could or tell me. Really angry and in shock and disbelief? They said it didn't matter for pregnancy but surely my womb won't be strongly supported and they said I would be at risk of prolapse later...? They also clearly had no concept of adeno - at least the one who explained to me.

Has anyone had this happen and what have been the after effects?

Grateful for any replies as very low. xxx

Written by
Janeyd27 profile image
Janeyd27
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Christin_a profile image
Christin_a

Hello

Sorry you're going through this. I don't have any personal experience but I'd recommend you ask for copies of your surgical records. So you can read when this happened and why etc.

Janeyd27 profile image
Janeyd27 in reply to Christin_a

Thank you. I have my records up to now which don't mention it being removed which is why I am baffled. The dr made it seem I'd have no follow up but will push for it as need more of an explanation. Hope you're well xx

You may also like...

Uterosacral ligament endo!

Hey, Has anyone had endo excised from here? I’ve got a 1cm nodule in my left ligament (luckily...

Endometriosis in the uterosacral ligaments and excision

Hi Has anyone had Endometriosis in the uterosacral ligaments and had it removed?if so how long was...

Uterosacral ligament Endo

understand. I had my first laparoscopy last November, they lasered deep endo on my right...

Does anyone have/heard of/can share their experience/pain with Uterosacral Ligaments please.

I may have some Endo on my Uterosacral Ligaments, just looking for as much info as possible PLEASE.

Endo on US ligaments and interstitial cystitis

wondering if anyone has been diagnosed with endo on their uterosacral ligaments who also experience...