I have no life!!

[Amib]

Hiya girls, this is my first time writing on here and think I’m just looking for advice/reassurance. Sorry it’s my life story 🙈

I am 27 and have struggled with pain in my left side for years since I can remember tbh. I have been palmed off with IBS since I was a kid. My mum has endometriosis but it doesn’t seem to give her much bother.

The pain is excruciating at times and find it hard to do anything but roll around the bed never mind go to work. I’m exhausted all the time and I am getting horrendous PMS symptoms. I am am emotional wreck most of the time. I’m having a heavy 4 day period and struggle to wear trousers when on my period with my bloated and painful tummy. I’m struggling to go the toilet when on my period and god forbid if I have a full bladder ouch!!!!

After my period I very rarely get a week before the pain come back because I’m ovulating. Then a few days where I’m actually me (even though I have this pressure all the time) i wouldn’t say the pressure is painful just like a ache all the time pushing down pain in my groin always on the left side.

Then the pms starts again and yep another hurendous period. It’s taking over my life!! And if I’m honest it’s getting me really down.

So I have been to a gynaecologist consultant before and bottled out the op because I’m overweight and really anxious about stuff like that. And to top the whole thing off......I am on a placement on the gyne ward at the moment 😭😭 I’m working with these nurses/ consultants everyday and freaking out bad about the appointment next week.

Can I ask to go to another hospital? Will it delay my op?

I really just want to be out this pain but I might die of embarrassment 🙈 any suggestions girls? Xxxxxxxxx

[Paige14]

Hi lovely,

I literally thought I was reading my own bio then. I have exactly the same problems, excruciating pain, the tops of my legs go numb, I'm sick with the pain, bloated, struggle with the loo; even down to the bad 4-day-pain. I am overweight, but I am not worried about the operation at all... although, maybe I should be? lol. When I went to my local hospital 7 years ago, they palmed me off with it being IBS, and the fact I am overweight. So I asked for a second opinion, where the found out through a lap, that in fact I did have Endo (I was diagnosed 3 years ago.) I have been transferred to a specialist now. You have every right to wish to change your hospital! Good luck to you,

Paige xx

[Amib in reply to Paige14]

Aww thankyou for replying Paige.

Oh wow so I guess I probs have Endometreosis then seen as we are so similar. I am looking forward to getting an actual diagnosis coz then I won’t feel like I’m make it it up!! Sometimes I feel like I’m going mad! Did you feel like that?

My appointment is on Monday and I have a diary of all my symptoms to take with me but I’m super anxious. 😭😭

I’m glad your under a consultant and hopefully get you sorted. ❤️ Ami xXx

[Paige14 in reply to Amib]

Its so weird because honestly, I feel exactly the same. I feel like 'I look okay' but Im not okay. I feel like explaining to someone how I feel, makes me look whacko lol. I completely get it darl and I am so sorry that you are experiencing this. Well done for keeping a diary, have you managed to write how long they last? It sounds very similar

don't be anxious, they are there to help you and hopefully you'll feel support from groups like this. 'I have no life' seems very apt, but you do learn how to control the pain I promise xxx

[Amib in reply to Paige14]

Yeah I have monitored my periods and ovulation for like 8 months properly. Even down to how long each period lasts, my flow, pain, what I did to get rid of it (if I could) pms symptoms, when I had sex all kinds of probs irrelevant crap but I feel that’s the only control I have sometimes 😩

So at least I have stuff to go in there with, coz ya forget don’t ya! You wanna tell them everything but ya always forget stuff 😂😂

Reading through all the other girls posts too and we are all so similar and I literally stumbled onto this page. I am made up I did now.

So glad I’m not the only one who feels like I’m going bonkers with it 😂 thanks for keeping me company on a restless and painful night anyway. Xxx

[milliem]

Hiya,

Please please please don’t get embarrassment get in the way!!

I had my op two days ago now and tbh it’s not that bad. You’re fully clothed for all of it when you’re awake! Plus waiting for another hospital might just delay the process.

Either way though it’s your choice, but I would just take the plunge and do it xx