suspected endo: hi everyone ive been... - Endometriosis UK

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suspected endo

cantthinkofauser profile image
5 Replies

hi everyone ive been suffering from really bad periods for a really long time but there were some extreme symptoms that finally made me realise something was up and in the space of a couple months i've gone from believing i'm healthy to being suspected of having endometriosis and emotionally i have no idea how to deal with it. i find it so difficult to talk about because my symptoms are gross and i hate telling people about it and i feel like this has come out of nowhere and the amount of anxiety and panic i've been feeling is really hard to deal with.

this is kinda long and rambley but i feel so lost and alone, does anyone have any advice? thank you x

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cantthinkofauser profile image
cantthinkofauser
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5 Replies
Indiegirl19 profile image
Indiegirl19

Hi there I’ve been newly diagnosed too and I’ve been feeling v emotional for the first time in ages. If you are working there may be access to any employee helpline for free counseling which hr can advise or your local NHS should have an online counseling service of some sort. Hope this helps in some way plus a virtual hug

cantthinkofauser profile image
cantthinkofauser in reply to Indiegirl19

i'm a full time student at the moment but i might be able to get help from uni services, didnt think about that! and thank you i appreciate that x

Oncmed profile image
Oncmed in reply to cantthinkofauser

I am currently trying a new contraceptive pill to try and control symptoms before thinking about key hole surgery. I am also studying my masters, I would recommend letting uni know. You don’t have to go into great detail if you don’t want to, but explaining its having a considerable effect on you they could give extensions and help etc.

cantthinkofauser profile image
cantthinkofauser in reply to Oncmed

luckily this semester has finished for me, but i will do for next year for definite! if any of this happened during the semester i don't know how i would have coped😅 thank you!

Peebles2sarah profile image
Peebles2sarah

I've found that only talking about it with a select few people has been helpful for me (for me, my boyfriend and parents). I of course never lied to my friends about what was going on, however, I spared them the detaills lol. I found it was nice to kind of keep that part of my life separate as well. Its easy to fall into a trap where all you think about/talk about is endo.. so I tried my best to keep people out of the loop so I could talk about other stuff and escape it for awhile. No one at my work knows the details either about whats going on which is nice. I mostly talk with my boyfriend about it (every day lol poor guy) and my parents when I have updates.

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