A question for women who have endometriom... - Endometriosis UK

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A question for women who have endometriomas and have been/are pregnant

Bluetop1981 profile image
5 Replies

Hi

I currently have 5 ovarian cysts which are pushing up my quite large endometriomas and making everything very painful. If I eat/drink, the pain worsens as there’s no room in here. My (new) worry is if 5 little cysts (largest is roughly 2.5cm) can cause this pain, how will I carry and grow a baby??

I would love to hear from others who have been through this. Thank you!

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Bluetop1981 profile image
Bluetop1981
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5 Replies
ccsmith profile image
ccsmith

I had a large endometrioma and fell pregnant. I was in pain but it was manageable and eased as the pregnancy progressed.

Butterflyblubum profile image
Butterflyblubum

Hi! I totally understand and agree, it's hard to imagine a baby growing when other bumps are already in there! I've had 4 babies and 4 miscarriages. I have uterine fibroids also. All early pregnancy was quiet painful for me- extremely stressful as was always convinced I'd miscarry again. The endo pain, pelvic and back pain continued my entire pregnancies but was very mild. I did have endo flares now and then but still mild. As far as the growing baby... well the uterus just stretches and fibroids or cysts are just pushed and compressed by the baby- very rarely are problem i was told.

Worst part for me was consistently being told by Drs I was ridiculous and couldn't have pain, as when pregnant endo is cured or goes away. Ummm sorry, what absolute bullshit- it's improved yes but NOT GONE ANYWHERE!!!

Hope this helps xx

ccsmith profile image
ccsmith in reply to Butterflyblubum

I’m with you Drs kept telling me I couldn’t be in pain!!! Even after I had the baby they still po pooed that the pain I experienced was endo even though during my c-section they removed loads!!

Rehanat profile image
Rehanat

I had a 10cm endometrioma when I fell pregnant and I managed fine. The pin completely subsided and the endometrioma shrunk down to about 6cm throughout my pregnancy. Labour was also ok. Ul be fine and try not to worry too much x

applebird profile image
applebird

Hi,

Firstly the endometriomas and cysts are disease and not designed to be there - if you become pregnant it is a natural process and your organs, ligaments will shift etc.

Secondly your pregnancy will likely shrink the cysts and endometriomas as oestrogen falls and progesterone rises = less pain.

I had stage 4 endo/a focal adenomyoma requiring multidisciplinary surgery prior to becoming pregnant. I did have some pain in the first three months but this is to be expected anyway as everything shifts around to accommodate the pregnancy.

Following pregnancy and 9 months breast feeding the adenomyoma had gone and I no longer needed surgery.

Hope that helps. xx

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