IVF started yesterday trying to be positi... - Endometriosis UK

Endometriosis UK

70,670 members52,133 posts

IVF started yesterday trying to be positive with poor odds

HarrietC profile image
12 Replies

IVF started yesterday 15-20% odds trying to remain optimistic, it would be great if I could hear some stories of women defying the odds. I am very number oriented and 15-20% isn't very high, I have had three operations lost an ovary and its been three years in waiting for this first round and I'm worried I still have endo cysts after seven months of Zoldex injections, I know they're going to grow with all this stimulation....just hope that some eggs do too!

Just after some feel good stories to keep me positive. I just feel like the horse no one wants to bet on at the moment. I want to know all the torture I've endured is worth the shot?

Written by
HarrietC profile image
HarrietC
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Tillyfloss profile image
Tillyfloss

hi. How are you doing?

I can give you a positive I was that horse 😃, stage 4 endometriosis with complications I won't bore you with, at the time of my last surgery (2017) the bsge specialist said I was one of the worst he'd seen especially as all my scans had been normal, I was only having a tricky cyst removed. Anyway, ivf was are only option and one they said could cause problems and a low chance of it working ( sorry they didn't give us a %). I was very apprehensive about the medication but was surprised to find that other than a bit of soreness I was fine, my cyst did grow but not much and I produced more eggs than anyone could have guessed ( my right ovary isn't supposed to work but did). For us it was a short cycle and I was carefully monitored throughout. I was very chilled out about, didn't have any expectations of it working but we wanted to try. I'm now 23 weeks after our first round much to everyone's surprise ( especially the specialist!). I was fortunate not to be working and I rested and didn't overdo it at all. We only told my parents and a very close friend as I didn't want the hassle of people asking about it. We have been through alot since I was diagnosed in September 2016 and have been told all along try but don't get your hopes up, but it can happen.

what type of cycle are you starting on?

lots of luck. Xx

HarrietC profile image
HarrietC in reply to Tillyfloss

Oh how wonderful it worked for you first time round congratulations!

I probably pushed for the % as I can rationalise better with figures. I won't have the nice surprise of an extra ovary unfortunately but it might still happen for us.

I'm on day two of 450IU Menopur a day at the moment till next Tuesday, then I have the first scan. They might stop, carry on as they are or add another drug. I wouldn't mind but it takes ages to draw but as it's four vials mixed together....I'm sure I'll get used to it.

Thank you for replying 😁

Tillyfloss profile image
Tillyfloss in reply to HarrietC

hi. How are you feeling? Hope the meds aren't causing any trouble. Are you at private clinic? Hope the scan goes ok on Tuesday. Xx

HarrietC profile image
HarrietC in reply to Tillyfloss

I'm doing really well I think, I felt a little techy but it's kind of nice to feel a little ragey with hormones after seven months of nothing.

We are a NHS referral to a private clinic but our consultant from the NHS is one working at the private clinic if that makes sense.

Thank you so much! I'll let you know I'm not going to beat myself up either way, I feel calm about it so no pressure 😊

HarrietC profile image
HarrietC in reply to HarrietC

Tilly floss just wanted to let you know I had the embryo transferred on Saturday and now I have a nervous two week wait 🤞 had seven embryos frozen so I'm pleased 😌 x

Tillyfloss profile image
Tillyfloss in reply to HarrietC

hi. I was only thinking about you earlier! How are you feeling? The two week wait is soooo long🙉. I tried to keep myself distracted but didn't over do it if that makes sense. Having 7 frozen is brilliant 😊 you must be very pleased. Hope you found the process ok, I was expecting it to be far worse than it actually was I think all the endometriosis procedures prepared me well for. Good luck I've got everything crossed for you. Xx

HarrietC profile image
HarrietC in reply to Tillyfloss

Haha yes I found the same thing, I imagined it would be all agony and it wasn't bad. They did knock me out to harvest, I was sore for a couple of days but was happy for the transfer on Saturday. So yep I have everything crossed, thank you xxx

Tillyfloss profile image
Tillyfloss in reply to HarrietC

hi. How you doing? Yes I was expecting it to be awful from friends who have been through it and it really wasn't, as you just a sore a few days after egg collection. I was surprised how knocked out the sedition was, thought id have some awareness but I don't remember a thing! When have you got to test? Got everything crossed for you. Xx

HarrietC profile image
HarrietC in reply to Tillyfloss

I can do a test on the 15th, I'm very excited about it but trying not to think about it every moment of everyday! X

Tillyfloss profile image
Tillyfloss in reply to HarrietC

hi. How are you doing? Xx

HarrietC profile image
HarrietC in reply to Tillyfloss

We weren't lucky this time. We have an appointment on the 8th to discuss the next round, so fingers crossed for our last free shot 🤞 xx

Tillyfloss profile image
Tillyfloss in reply to HarrietC

hi. I'm so sorry it didn't work this time for you, I hope you can keep positive and take the opportunity to look after yourself. At least with having some frozen you won't have to go through a full fresh cycle. Have you got a friend or family member who knows? My parents and a close friend knew and I found it helpful talking to someone other than my hubby. Hope you are having a relaxing weekend. Xx

You may also like...

Positive or Negatives stories of IVF with Stage 4 Endo?

Hi All, I've had three surgeries for endo and one previous round of IVF, I am also 39 years old...

Started on yasmin yesterday

and I feel so sick today. Lost my taste buds and just feel so sick. Is anyone else on yasmin who...

Newly diagnosed with Stage 4 Endometriosis and trying to stay positive!

Hello everyone Firstly can I just say how great it was to find this forum, as I don't know anyone...

Trying to remain positive!

to diagnose myself before getting a referral! Just wanted to rant a bit as its v difficult to...

IVF or keep trying naturally

would like to either operate and risk damaging my ovaries or have me go through IVF soon as it has...