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Endometriosis UK
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GnRH and Hrt treatment

I was diagnosed with endometriosis back in May when I have a large chocolate cyst removed. Im still in horrendous pain and have been on Triptorolin injections (GnRH) for 5.5 months. The pain seemed to be getting slightly better - well manageable until 3 weeks ago when I started on HRT (Sandrena 0.5mg per day), the doctors started me on this as my hot sweats are keeping me awake every night so im only managing about 2 hrs a night. The painhas now come back with a vengeance since starting HRT. Does anyone know whether this is normal and it will settle down again as im at my wits end, as I felt like I was getting a bit better and now im in lots of pain again? On top of this, I can't get a consultant appointment until July this year which means I will have been on my triptorolin (GnRH) for 10.5 months when the recommended time is 6 months, so need advise about whether this is safe ? Any help would be great. Thank you

5 Replies
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Hi honey, I am so sorry for your pain. To be very honest, I have never listened to doctors 100%. I listen to my body more. I was in a bad shape upto few years ago. But I started with pills that was discontinued then I got merina IUD Inserted. But before all this I was taking ENDOVAN from Komodo pharmaceuticals. I did my research and took chances. I would say the endovan helped me, and after the pills that got discontinued had helped me a lot. And merina IUD did truolble me for a little while and still does but the pain is bearable. But I know the day merina comes out I will be in imbearable pain and clots. I say so because after 4 years of iud I went through hell for two months. So compared to that pain I can take other side effects.

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Many thanks for your reply. Did you ever have the injections (GnRH) or did you just try Endovan ? do they cause side effects? Do you think I should not have anymore injections and try Endovan instead ?

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I did have hormone injections after laparoscopy. I don’t remember the name, but that created havoc on me with hot flushes and and internal disturbances. I have never taken that again and it’s been 10 years. Endovan is kind of herb but not FDA approved but I took my chances anyway. It’s better than those injections. Try and see what suits you I would say each body is different. I hope that helps

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thank you, it really helps to talk to people with the same experience - I thought it was me going mad!!

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Hey girls, why don’t you guys check out Nancy Nook endometriosis education. One of the lady just mentioned and I joined the group and it had wealth of knowledge. I promise non of you will be disappointed. When signing they ask theee questions and we are not allowed to ask questions for the first week. We have to explore to understand.

It mentions about the hormone injection too. I hope this helps you. Some of us may not have been lucky but I making sure all of you can have the right info.

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