I’m going to try and keep this simple but load it with information, so I was diagnosed with PCOS at 17 after getting my first period at 15 and then nothing till I was about 18, I’ve lived with it for 12 years now and found that it’s been a right pain but manageable to some degree with the help of meds and diet not because I have PCOS but generally I like to eat healthily but I have always had heavy painful periods always around 9-16days they last but the past 2 years things have changed drastically I woke up in the middle of the night completey drenched in blood and unable to move wasn’t pregnant and really struggled with getting pregnant but the flow was so heavy I could barely stand up and that lasted for 3 months, in and out of hospital and they put me Norethisterone to control it but that just made it turn to water and worse, pain was like a UTI type pain but x100 and sharp pains down my thighs and groin area.
After those 3 months I didn’t see a period for 5 months and then spotting I have never in my life had spotting the spotting lasted for 2 months non stop and as it started getting heavier the pain came back I usually always have a dull ache in my abdomen but the sharpness was when I knew my period was imminent, everytime I go to open my bowel I bleed heavier for an hour or so after and then it goes back to spotting/light period, if I even attempted to walk more than 15 minutes I’d be completely overflowing with blood even started wearing incontinence pads...
I’ve been to see gynae for almost 6 years they’ve been telling me try this pill and try that and even put the coil in which made me bleed for 7 months non stop.
I became anaemic and now since October I have had spotting and heavy bleeding on and off, I hate opening my bowels as it hurts and the bleeding is much worse.
I have the classic signs but I don’t get why no one is taking notice
Pain during sex, bleeding after sex and painful urination after sex
Pain when opening bowels and I bleed (not from back passage!)
Heavy periods
Pain in lower abdomen, lower back, legs and groin.
Constant UTI’s which my gp said is a sign for some women.
I’m seeing my gynae next month she wanted me to lose weight but I can’t eveb pick up a kettle when I’m bleeding like this it pulls on my back and I can barely walk so how am I supposed to lose weight. I have never had problems with my weight since the new symptoms I have gained weight but she is reluctant to check for endo, said it’s not that common as people make out. It could just be my PCOS.
Sorry I said it was going to be simple but I ended up posting an essay!