Results

[ch2018]

Thank you to those who replied to my last post. I've had a lot going on recently so have not had time to reply. I had my mri a week ago and got my results on Friday. I have severe endometriosis in both my tubes which mean they are completely blocked. I have 2 large cysts on my right ovary and 1 large one on my left so I will be having open surgery to have these removed anyway. With regards to my tubes I have been given two options....Number 1 they try to remove the endometriosis as best they can which would mean I still have a chance of conceiving naturally (I dont have any kids yet and 30 years old) or if they are that badly damaged have them removed and would need to go down the route of assisted pregnancy. Has anyone else had endo in their tubes and had it removed and managed to conceive? I have been warned thag I would be highly susceptible to having eptopic pregnancies. So I dont know which route I want to go down...do i try keeping my tubes at the risk of having eptopic pregnancies or do I just have them removed? I'm so heartbroken. I know it happens to so many women but I feel like I'm broken as I am unlikely to do whag should be "natural" for a woman and to get pregnant.

Any replies I would be most grateful for.

C xx

[SConnor]

Hi C,

I'm so sorry about your test results, they are hard to process. I was diagnosed with endo cysts on my left ovary and later on endo was found in the right tube too as I was failing to fall pregnant. I had the larger cysts removed by laparoscopy and the recovery was very quick.

I had a hard time with the decision on the blocked tube because there was a hidrosalpinx too and this is linked to a higher rate of miscarriage. So there was a possibility that the tube was blocked but not 100% and I was at risk of MC and as you say of ectopic pregnancy...

I only started to see the light at the end of the tunnel when I discussed my options with a fertility specialist and he recommended going straight to IVF to avoid a second surgery.

In your case, looks like it could all be done in the same one.

I guess my advice from deep in my heart is I understand your pain and that you probably feel lost, make sure you speak to and endo specialist and a fertility specialist. I found these professionals were best placed to guide me as they really have experience in both topics.

I wanted to give you hope too, I recovered very well from surgery, have had normal non-super-painful periods since (miracle!) and am pregnant with our first IVF. I have another cyst now that may need some attention in the future but I feel "safe" I know have a clear diagnosis and can speak to the experts.

Good luck, you will find many endo stories in this blog, you made the first step which is getting your diagnose! xxx

[ch2018 in reply to SConnor]

Hi SConnor, thank you so much for your reoly, it means so much more from someone who has been through similar experiences. I have spoken with my mum and my closest friend and they were saying for me to try and have the endo removed and keep my tubes. It has only been my sister who has said she would have them removed which was the way I was leaning too. I could potentially have the endo removed and leave damaged tubes and possibly deal with the heart break of eptopic pregnancies.

Congratulations to you. Its so good to hear success stories.

How do you go about speaking to a fertility specialist?

So did you have key hole surgery? Ive been told my cysts are too big for that which I'm a little upset about.

Thank you so much for telling me your experience.

C xx