Bladder pain and MRI

[Amelie8]

Hi everyone

Does anyone else get extreme pain when weeing. No infection, all been checked. I have to hold from screaming with the pain.. same with some bowel movements..

Also can Endometriosis be found/seen on MRIs?

Thanks xx

[AllthatGlitters]

Hi, I don’t have pain when urinating but do go to the toilet a lot! It’s ridiculous. Only way to diagnose endo is by laparoscopy. Your GP may think you have it based on your symptoms but to be 100% sure they need to do a lap unfortunately. MRI can detect Adenomyosis though, going by personal experience x

[Amelie8 in reply to AllthatGlitters]

Hi thanks.. I had my 3rd lap 4 weeks ago, checking for endometriosis . Doc "general gyny) said there were no "obvious" signs of it. However I have adhesions which he removed. I have also had my right tube removed when I was 16 and I was told 4 weeks ago I also had my right ovary removed, either when they took my appendix or my tube this was news to me.

Anyway I have had no relief from my symptoms or from the pain! I have all the symptoms and this has being going on for 10 years with many scans.

Thanks. X

[Bdgjdjd]

Yes this pain is a symptom of endometriosis

I have very advanced stage and my forst symptoms were bowel and bladder pains during urination

Did you have this kind of pain during sex which could lead you to stop ?

[Chrysta123]

Hi,

Yes when on my period I am in extreme pain when I go to the toilet to the point without strong painkillers I actually cry/my body like shuts down and I can’t go because of the pain. I have been told it is a sympton of endo by my gyne, not sure about the MRI thing though sorry

[Mjangel]

Hi Emily. Answering your second question... Although NHS says laparoscopy is the only way, it isn't. I've had MRI scan with contrast (it is the type of substance that is dose through the siringe, helping to see clearly your entire organs) I was diagnosed in UK with potencial endometriosis, and the next step was laparoscopy. Having to research on other options in the country I was born, I've found there are other, called noninvasive, method of finding conditions like endometriosis, and MRI was one of them. As I've mentioned before, I had my MRI scan done just few months ago. The results were different than from I expected. It turned out I have no endometriosis at all, and instead the condition that I have is called Pelvis Congestion Syndrome. I'm so happy I won't let them do the laparoscopy. Thinking of this now it would've been so much stress and the result would've been even more devastating, hearing that they didn't found anything and that I was perfectly fine. Sorry, my trust is not with NHS any more.

[Amelie8 in reply to Mjangel]

Thank you. Never heard of pelvis congestion syndrome.. did you pay to see someone private?

[babykaren]

Hi I have same problem am having cyscopy on Tuesday mine was kidney infection have had two in month an blood in urine

[Amelie8 in reply to babykaren]

Thanks. Hope it goes well xx

[babykaren in reply to Amelie8]

Good luck hun keep yr head up I. Don't have endometriosis but do get bad pain still when passing urine be pushy with doctors an don't have it xx

[Pheebeh]

Hey lovely,

I had endo on my bladder which meant I needed to wee more frequently and once excised, I have continual bruising pain on it. It hurt also just as I finished weeing, like when it had emptied I'd be all "ooow ow ow ow ow ow ow".

Like you, no infection, just endo. I've had MRIs but they have never shown endometriosis, only when I had a laparoscopy it was found.

Very painful periods, weird bruised sensations, painful sex, painful pooping/weeing, pressure sensation up your bum, lethargy... are just a few of the regular symptoms of endo.

Try to be referred to an endometriosis specialist. If there's a long waiting list and you can afford it, try and see one privately (£200 odd) to help with any diagnosis xx

[Amelie8 in reply to Pheebeh]

Thanks for replying . Everything you've said I totally sympathize!!! I don't know how to find a decent doctor 🤔😔 did you go private? I've had a laproscopy with no obvious signs of Endometriosis, just adhesions (see my last post) xx

[Chloes161290]

Oh no I’m sorry to hear that, I’m currently experiencing exactly what you said but when I mention my endo to the GP they just ignore it! I’m not sure whether an MRI can detect it? Do you have any follow up appointments? I’m not much help sorry but I literally feel your pain; it woke me in my sleep last night and the pain was worse than when I was in labour 😢

[Poppy1973]

Hi Amelie8

I experienced the same symptoms and was sent for a cystoscopy, this was relatively painless (other than feeling like I needed a wee !) the consultant saw an area on the inside of the bladder that was normal, called in other consultant who suggested endo, fast forward 3 months, mri and surgery complete and no pain x

[Johans11]

Hey,

I used to get this. It was so bad that when I tried to pee when on my period it would be so painful I couldn’t relax my muscles to go. It turned out I had endo on my bladder. They could see the module by MRI with contrast but couldn’t tell if it was attached. By the time I had surgery 6 years later it had grown full thickness through my badder. I had surgery in January to remove it and had to have a catheter for a while to let it heal. I am totally symptom free now though and feel better than ever. I hope you find answers. Sending love your way xxx

[Cotton_Candy]

Hi, I'm so sorry to hear about your pain. I just did my first and hopefully last laparoscopy on Tuesday. I have stage 4 endometriosis and it was EVERYWHERE in my pelvic area, it even grew on top of my bowels. I experienced severe pain while peeing as well. I would scream, throw up, cry, faint and sometimes need a morphine injection from how painful peeing was for me. They had to put me on Fentanyl Transdermal Patches to control all the daily pain. Apparently the internal bleeding that is caused by endo can affect your bladder and cause severe pain. That's what could be happening in your situation.

I did an MRI 3 weeks ago and it only showed hemorrhaging endometriomas (cysts caused by endometriosis). It wasn't very helpful.

[weekari]

Hi,

I was diagnosed initially with MRI that I had with orthopaedics due to back pain. I've since had another mri and a ct scan with contrast with gyne. So endo can definitely be diagnosed this way, although some can be missed.

I have a lot of pain as I pee. It's like it's ripping but once I actually have a flow, the pain goes away. It's very painful but for me only lasts a few seconds.

A clear mri wouldn't necessarily mean you don't have endo though. It's got a lot to do with the experience & skill of the person doing it and the location and severity of the endo.

If you know there's something wrong, the biggest piece of advice I can give is to persist with your doctors until you get some answers. I've been fobbed off a few times and just took that to mean I was making a big deal out of nothing but 4 and a half years later, I'm eventually finding out I do have some serious issues that could have been felt with years ago had I only persisted. Listen to your body and your instincts.

Xx

[Mash11]

MRI can 100% detect endo x