New to site

[Jess_B]

Hello all,

I am currently experiencing worsening symptoms of Endometriosis and just wondered if anyone has any advice.

I was diagnosed after a laparoscopy in March 2017. I continuously experienced stabbing pains I my right side and went to my GP. I was misdiagnosed with a kidney infection and sent home with antibiotics.

I went back. I eventually got sent for an ultrasound in which my womb was spotted as being tilted. I then had a laparoscopy in March 2017 which picked up Endo.

I was then sent away with GNRH which I reacted badly too ( I am a teacher and felt like I was constantly going to faint) so I stopped taking it. My GP then prescribed me Mefanaemic acid tablets to take during my period to lessen the pain.

After my last period, I went back to the GP yesterday and I am now awaiting a referral back to gynaecology. I am in pain. I am having trouble sleeping. I have been prescribed full strength Iburophen ( 600mg) in the meantime.

I am 27 and have been with my fiance 8 years. I have not yet conceived. I feel like this is now taking over my life.

Any support would be immensely appreciated. I have tried keeping active and changing my diet and take folic acid tablets everyday.

Thanks.

[HighlandMoo]

Take ALL my support \o/ But really, so sorry to hear you're going through this. Its a horrible common interest most of us have on here. Nasty to go through, but I have never felt better coming on here and chatting to those going through the same thing.

I've had my lap and now I am about 6 weeks away from my surgery. I suffer with Endo in all the usual place, with the extra bonus of having it on my bowels, bladder and diaphragm. I've been put on Zoladex for the meantime with no HRT to counter the effects. Its a double edged sword, easing the endo pain but going through Menopause. Which in some ways in equally as stressful and traumatic. As a confident 33 year old I feel I have developed massive stress and anxiety from all of this. BUT..

I am okay. We are only given things we can handle (I am not religious) and I tried not to think about the future too much for the now. I only cross every bridge as it comes. I wont lie, it does start to consume your life, but only if you let it. If you have a bad day of pain, relax as much as you can and thing "tomorrow, I will be in less pain". Even if you're not, tell yourself the same thing the next day too. Fake it until you make it

The constant thought of "I AM IN PAIN EVERYDAY AND NIGHT" is tiresome and all consuming, you get exhausted just preparing yourself for the pain to come. So when you are slightly more pain free, go live life Get memories to think about while you are in pain.

And remember, now this is the best bit, it is temporary. Yes, it may grow back further down the line but once you recover you'll have a moment of "oh, so this is what it feels like to be 'normal' again"

I cannot wait for that day, and that keeps me going.

Good luck in your process

C