Some may already know, I've had a bit of a run around with the doctors. I have been very ill for 4 years, mostly with debilitating fatigue but also abdominal pain & bloating and back & hip pain. I've had to stop working it's so bad. I don't feel I'm really living. I had a clear lap 2 years ago so was discharged from gynae. orthopaedics did an mri in May, thinking I had arthritis but I was told I had severe endo throughout my pelvis and was referred back to gynae and the specialist endo centre has been involved, looking at my scans and advising. They wanted another more specific mri so I had that last month and was waiting for the endo team to review and recommend. Today I spoke to the consultant about that. He said that there appears to be a cyst behind my womb, but not attached to it. It looks like it is coming from my ovary. He said the team now want a CT scan to again have a better look and to plan for surgery. I asked if there was more endo other than this cyst and he said that's what the CT scan will tell us.
I just don't know what to think. I feel the information is being drip fed to me. No one has ever mentioned a cyst before. Plus, I thought cysts were fairly common in endo and I wouldn't need all of these scans before surgery to remove it.
I feel they're still not telling me something.
Has anyone got experience with anything like this?
It'll be another 2 week wait to get my CT scan but he said I'll know quickly after that what the plan is.
Any help/advice/information would be much appreciated.