Endometriosis advice

[kerryAnn87]

Hello,

I'm new here, I'm 30 years old. I'm looking for advice. My periods have always been light with the dull ache in my back, never had pain in stomach or anything, I've been lucky all these years. Anyhow back in February I had my first very heavy period, I honestly didn't know what to do, My stomach was more bloated than usual, I had intense pain in my tummy, back and hips. I just put it down to stress!. However I still had this uncomfortable pain after my period, same thing happened again on my next period. I noticed that I had pain before, during and after. I had alarm bells to go and get myself checked my smear was due anyhow. My DR referred me for an internal ultrasound scan to check for cysts on overies that came back negative, smear came back negative..2 weeks later my DR did another smear as you can imagine I'm freaking out a little, she also did an examination, wasn't until after she told me I had bit of internal bleeding around my womb and that I stand a high chance of being Endometriosis! I thought great I'm not making this up, there is actually something not quiet right, she referred me to see a gynaecologist consultant. Within 6 weeks I was being seen by this consultant, she seemed very sturdy lady!. I broke down in tears from the pain!. She put me on the contraceptive pill to take constantly for the next 3 months to see if this helps with the pain..Let's just say the pill hasn't worked, I've taken the pill every day on time without fail, and I have had a period that shouldn't have happened and all hell has broke loose in my tummy, back, hips and thighs which has resulted me loosing 2 days of work!. I've phoned crying out to the drs & all they're more interested in is trying to pump strong painkillers down my neck!. I havn't had sex in a very long time as it's so painful afterwards, I've started having pressure on my bladder that results quick dashes to the loo followed by cramps afterwards.

I'm feeling physically and mentally drained, feeling very very low in myself which isn't like me at all, feel like there's a little demon inside my tummy trying to rip my womb out, I'm fed up looking pregnant, fed up of being fobbed off!.

My question is, is it even normal to have a period that I shouldn't be having and what the hell am I suppose to do now?. I'm literally loosing my wits!.

[MMary-Moderator]

Hi kerryAnn87,

I’m sorry to hear about how you’ve been suffering with endometriosis – it sounds like you’ve had a really difficult time.

We have lot's of information on our website which you may find a useful read: endometriosis-uk.org/inform....

If you need someone to talk to, we do have a network of support services that are available to anybody affected by endometriosis. Our free helpline (0808 808 2227 )is run by volunteers who have personal experience of endometriosis. The helpline is open most days – the times it is open can be found here: endometriosis-uk.org/suppor...

You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit: endometriosis-uk.org/suppor... to find out if there is one in your local area. If you find there is not a face to face support group in your local area, we have an online support group.

Best Wishes

M Mary

Volunteer Moderator

Endometriosis UK

[kerryAnn87 in reply to MMary-Moderator]

Helllo,

the last 5 months have been tough, it's the pain is taking it's toll on me, I'm physically & mentally drained!. I can't do with the pain anymore. However I've managed to get myself an emergency appointment with my consultant in the next few days, I can't hang out till September!. This is all new to myself and Fiance we just don't know what road to take or what to do!.

Thank you so much, I shall check the links out!.

Kerry.

[Ellenj85]

Push your doctor for a laparoscopy and don’t stop until you get one!!! I was exactly the same and found out that I had endometriosis through my bladder wall. Good luck and hope you find the answer soon xx

[kerryAnn87 in reply to Ellenj85]

Hi Ellen, I'm on my 7th day bleeding and pain!. We've managed to get an emergency appointment to see my consultant in the next few days, instead of waiting till September. I'm so sorry you have been through the same thing, totally feel for you!. Hope your pains is more bearable?. xx