Medical support for endometriosis

[Buffalou73]

Hello, can anybody advise on how to go about getting endometriosis support? My GP is never able to help and I don't really know where else to go to seek advice on managing my symptoms. All advice welcome. Thank you!

[MMary-Moderator]

Hi Buffalou73,

Are you under the care of a consultant? Some hospitals have gynecology nurses, some of which are specialist endometriosis nurses. In between consultant appointments I have been able to make appointments to see the nurse to discuss things like symptoms and treatment.

We have lots of information on our website that you also might find a useful read: endometriosis-uk.org/inform...

Whilst it is not medical advice we also have our support groups and helpline if you ever need someone to talk to: endometriosis-uk.org/get-su...

Best Wishes

M Mary

Volunteer Modertator

[Buffalou73 in reply to MMary-Moderator]

Thank you so much for the reply, I really appreciate it. I’m not under the care of a consultant (I was around 8 years ago after my laparoscopy). Do you think I should contact that hospital and see if I can see the same dr? I just hate going via the GP. All they ever do is suggest the Mirena coil!

[MMary-Moderator in reply to Buffalou73]

Hi Buffalou73,

I know with the current Endometriosis Center I am under the care of I can just call up, so it might be worth a try? I did in the past find that a previous consultant at a different hopsital had discharged me so I couldn't then make an appointment directly but had to be re referred via my GP. I'm not going to lie I did have a bit of a fight with my GP in able to be referred but I used the NICE guidelines and also the PALS service and managed to get a referral to my local BGSE endometriosis center (bsge.org.uk/endometriosis-c.... Since then the NICE guidelines have been updated as well: nice.org.uk/guidance/ng73.

Best Wishes

M Mary

Volunteer Moderator

[Buffalou73 in reply to MMary-Moderator]

Thanks am going to do my best to get an appointment with a specialist as I feel they are getting worse (in terms of blood loss and fatigue) so I need to do something if I can.

[princessk09]

Ask your doctor to refer you to an endo specialist at a hospital. They have a better understanding of the condition and will be able to help you out more xx

[Buffalou73]

Thank you, I'll do that