Just been diagnosed, what to do next?

[Barbara_Sp]

Hi everyone, I am new here and I have just been diagnosed with Endometriosis and possible Adenomiosis. I am still learning about them but few things about myself have now started to make sense. The gynaecologist suggests a laparoscopy but I would like to see a Endometriosis expert to find out a bit more. So, where can I find an Endometriosis expert? Or how can I tell that a doctor is an Endometriosis expert?

Also, how can I find out at what stage my endometriosis is?

[Lovisa]

Have you had a laparoscopy for your diagnoses as endometriosis can only be 100% diagnosed with surgery as well finding out how mild/severe it is.

[Barbara_Sp in reply to Lovisa]

No I haven't done it yet. I have a 2 year old daughter and the doctor told me that If I want to have another baby I should try now, before the laparoscopy. if I am not getting pregnant then we should do the laparoscopy. I am still a bit confused about everything but it seems to me that my pregnancy has worsen my endometriosis. I am wondering if there are endometriosis specialist I can talk to because the more I read the more scared I get.

[MMary-Moderator]

Hi Barbara_Sp,

Here is a link to a list of BGSE accredited endometriosis centres: bsge.org.uk/centre/

We have lots of information on our website from diagnosis to treatment that you might find a useful read: endometriosis-uk.org/inform...

In addition to this forum we also run local support groups, our online support group and our helpline if you ever need anyone to talk to: endometriosis-uk.org/get-su.... It can all be very daunting and knowing there is someone there to support you that can relate to what you are going through can be such a relief.

Best Wishes

M Mary

Volunteer Moderator

[Barbara_Sp]

Hi Mary, thank you very much for all these information,especially for the support group link. To be honest, I feel a bit lost but seeing all the great women in this group dealing with endometriosis has made me fell less lonely.