Bladder

[Alex9]

If you have endometriosis in the bladder please tell me your symptoms.

Since having my son 4 years ago my condition has really worsened. One minute my ovaries were fine , the next I have cysts. I suspect my bladder is now affected too.

My gp does not seem to know one end from the other but I will be insisting on a referral soon.

Looking forward to your replies

[Lyn84]

Hi i have endometriosis of the bladder as well as other areas my symptoms started with needing the toilet constantly like i had a bladder infection i had test after test to check my bladder then one day i woke up and was pouring blood from my urethera i have now found out it is also attached to that it has given me agonising pain when i have my period

[Alex9 in reply to Lyn84]

Thank you so much for your reply Lyn.

Yes I have the need for the loo almost constantly day and night leading up to my period. I was also testes for uti but it was clear.

So sorry to hear your experience that must have been scary.

I get pain in the bladder area and bad back ache and throbbing .

Oh the joy !

[Lyn84 in reply to Alex9]

Have you had a laparoscopy? If they confirm it you may be able to have it removed i couldnt have mine removed as it would have caused damage to my urethera i also cannot take any medication for it as i am trying for a baby other than very painful periods as a teenager my other symptoms did not start until i stopped the pill a couple of yrs ago then all hell broke loose with my body

[Alex9]

I've had 2 laps in the past . My gp and local hospital are not very good ( I used to live in central London where they seemed much more clued up ) .

I know I'm due for another op soon but it looks like I'm gonna have to fight for it !

[Lyn84]

Dont them them fob you off i had to fight to get a diagnosis cos nobody seemed interested in helping me i went to a&e three days in a row when i was really ill because two drs fobbed me off the third took me serious and sent me straight up to gyny

[Husky47]

I don't know if this will help at all but I have had symptoms for years of endo and had three laproscopys in 3 years looking for it as well as ovarian cysts. My symptoms kept getting worse and one day my gynae doctor noticed my urinary symptoms. Frequently and urgently going and always feeling like I had a uti as well as constant pelvic and back pain. In January he sent me for a laproscopy and cystoscopy and they found signs of intisitial cystitis in my bladder. The doc said the clinical symptoms are the same and it can be really hard to diagnose. I see a urologist on Tuesday but after 6 years I finally have an answer. Not sure if it could be the same for you but it could be worth asking about xx

[Alex9]

Thank you every body for your replies. I've just started a new job as soon as I have settled in I will be seeing my gp about this and pushing for a referral. I do think it's time for more surgery

[Bdgjdjd]

for me i have difficulties with peeing i can’t pee there some pressure because endometrioma on my ovary i pee like drops and some times i feel my pelvic so bloated so it becomes like impossible for me to pee I noticed that my pee more darker than the normal