Endo & Raynaud’s

[Username12345678]

Hi Ladies,

Does anyone also suffer with Raynaud’s phenomenon as well as endo?

I was diagnosed (after 7 years of mid-diagnosis) with endo after being rushed in to hospital with suspected appendicitis. Turns out the endo was actually crushing my appendix so 6 months after that opp I had a lap to treat it.

That was 3 years ago and I managed 2 good years without any treatment before the endo came back with a vengeance. I’ve spent the last year trying to get a pill to work to manage my symptoms but to no avail.

I’ve also notice that the Raynaud’s symptoms are occurring more frequently and more severely since I started messing around with different pills.

Has anyone else had a similar experience?

Thanks

[Rachel_1666]

Evening..

I have suffered with Raynauds for years.

I am yet to find out if I (officially) have endometriosis- I have my laparoscopy 2nd March and investigate + remove two ovary “chocolate” cyst.

I currently take Adalat LA 30mg

What about yourself?

I just wish for the winter months to pass quickly!

[Username12345678 in reply to Rachel_1666]

Hi Rachel,

I don’t take anything to manage the Reynauds, (I’m lucky that it doesn’t cause me pain) have just noticed it getting worse and I had s particularly bad episode a week or so ago when I think it caused me to almost faint while walking the dog.

But we’re having a very cold winter so it could just be that.

Has the adalat helped? Any side effects?

After seeing the doc yesterday I’m going referred for another lap as I have really struggled to find a pill that will manage the endo.

Good luck with your lap, I hope it goes well. Just getting a diagnosis for endo is something, at least you know for sure what you are dealing with!

[Rachel_1666 in reply to Username12345678]

Hi..

That’s good - it is more the swelling/ numbness of my hands which is the big issue (and why I first went on medication)

I’m sorry to hear that - maybe try walking with someone? Not nice to have that feeling when you are on your own.

It has been cold recently some mornings, definitely.

I completely believe it has helped.

I started taking adalat retart (I think it was called) then my symptoms were more serve so they put me on to adalat LA 20mg and now again 30mg

Side effects - personally I don’t think any. (Obviously just would need to check that your doctor would be happy for you to take it) I take it just during the winter months and then come off when I feel it getting warmer.

On the side of pill - I had a IUS Mirena fitted years ago and thought it was really good - however I had to have it removed as it came out of its place .. so now to stop the constant bleeding I am taking loestrin 30 continuously for 3 months and then a week break.

But you definitely have to find the right pill for you. It is good that they are referring you again though.

Thank you. Yes be interesting to see what comes out of the lap next month. Just now a waiting game until then.