Endometriosis UK
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Hi everyone I'm new to this page

Hi I am 31 years old and was diagnosed with endo just over 3 years ago through surgery, they removed the endo that they found but 6 weeks after my surgery I was back to normal with bleeding and pain, in 2017 i was put on prostap injection which helped to stop my bleeding but didnt help with my pain,after having 5 prostap injection they put me back on cerazette tablets,and I'm currently on codydramol for pain but it doesn't help. It has been spoken about a few times about considering a full hysterectomy, I am very bless to have had 3 children one if which died at 7 months pregnant. I have been told that a hysterectomy may not work to help my endo, I was also told because I was on prostap and the pain continued that there is less of a chance of hysterectomy working,I have other health conditions which puts me at greater risk in surgery. I am feeling very lost at the moment the pain and bleeding is unbearable, with my two boys and husband I feel constantly guilty even though they are very good and understanding, can any one offer any advice please.

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Hi i am in the same boat as you the only options I have been given now is the marina coil or the prostat injection I want my tubes out but they will not do it there saying try this first then this it's like u no what u want yourself but they don't want to help you I hope all goes well.for u what ever you choose to go with take care

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Hi Westlife I was on the prostap, it stopped my bleeding while I was it but I had bad side effects,they tried me on HRT patches while I was on prostap but I had really bad headaches from the HRT, I was bleeding for 3 months before prostap so the relief from that was good,I have been heavily bleeding again now for 3 weeks the pain in crazy, i am always asked to try different things everyone I go or just wait a bit longer so I get your frustrations,I'm seeing my consultant on the 15th so we will see, thank you for replying to my post, I hope you can get something sorted x

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I hope you get sorted out too soon it's not fair to be in pain and suffering we are humans and should not have to go through day bay day life feeling sad and not wanting to go out worried about bleeding for days on end let me no how you get on take care xx

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It's so hard to explain to others what we go through, it's nice to chat to someone who understands. Thank you take care x

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