Hey fellow endometriosis warriors.
A little background... I was diagnosed with endometriosis in June of 2014. They didn’t find much so didn’t remove it. Then in May of this year, I had endometriosis excision surgery, and my surgeon found a lot of superficial endometriosis. The front of my bladder was covered in it, too. She said she excised it, although she wouldn’t have been able to excise it all.
(I also have chronic pelvic pain syndrome, adenomyosis and polycystic ovarian syndrome).
I had a flexible sigmoidoscopy done on September 6th, and I saw what looked like endometriosis in my colon. Although the endoscopic nurse said that the flexible sigmoidoscopy was normal. But I am hoping that my specialist/surgeon will give me some answers.
Since having the flexible sigmoidoscopy done, I am getting so much more pain. I have started getting awful pain and discomfort in my kidney area and flank, which goes into my groin and into my sides. GP originally thought a kidney infection or UTI, they’ve now decided that it is. Now saying it’s muscular. But I know it isn’t muscular.
The pain is a constant dull pain and is accompanied with pressure, like someone is pressing down on my kidney area. But I have also been getting intermittent burning pain and stinging pain in the same area. And intermittent throbbing.
I’m thinking that it could be the endometriosis growing back already, and getting worse, as all my endometriosis symptoms have been worsening over the last month/2 months.
I have emailed my surgeon, but no reply yet. So thought I would ask for you guys opinions.
Thank you in advance. Sending you all love and light. S x