Help advise and support will be much appr... - Endometriosis UK

Endometriosis UK

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Help advise and support will be much appreciated

Tia1991 profile image
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Hi everyone im new on here my name is Tia and I'm 26 I have suffered in severe pain since i was 15 year old my Dr put it down to IBS I missed out on education and work i asked my dr if it could be endo he asked why i thought that i told him i searched my symptoms on the internet he turned round and said "NO you haven't got it" in 2014 after many other drs opions he eventually referred me to a higher gyneo he diagnosed me with endo since then ive had 4 differents ops and now got the all clear of endo I had about 6 months totally free of pain I felt like I had a life again however the pain gradually come back the gyneo then put me on zoladex injection (monthly) which took my pain down from 8 out of 10 to about 4 which I was happy with apart from the odd bad day a month then Dr changed my injection to the prostap 3 injection (3 monthly) my pain has got really bad again but its making feel really depressed its breaking me after I've been for a belly scan and the drs say "there is nothing there and its all in your head" my husband helps in all he can but I snap at him unintentionally its breaking me and just needed to talk to someone else who really knows what I'm going through.

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Is the suggestion that you use Prostap long term?

It's confusing that you'd be prescribed Prostap if the doctor thinks there's no endo. Unless it's supposed to be preventative? Xxx

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Tia1991 in reply to

Hi that's exactly what I thought when I questioned it he said it helps dry the endo up ?? I don't know. They wanted to keep me on the prostap for 6 months they said and see what happens from there but I have asked to go back on to the zoladex injection as that gave me more relieve. Xx

Thank-you for your reply

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