Endo on Women's Hour today

Emma Barnett (who has endo) will be talking about it on women's hour on radio 4 at 10 if anyone is around to listen.

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Thx for sharing. I feel it's important to be honest here; Woman's Hour could and should have done a better job on behalf of us sufferers.

BBC Woman's Hour have not covered this topic properly for many years - and it's impacting so many of us in so many ways.

Yes, the relationship side is one aspect of this disease, and I know they weren't pretending to cover it all - but there are far bigger issues that need addressing and need to be discussed and shared with the nation - in order to improve diagnosis, treatment, and general understanding of this disease.

We need to have them dedicate a full show to the utter disgrace of delayed diagnoses, GP lack of knowledge, women losing careers, repeat surgeries, infertility, IVF. I'm not saying that the relationship impact for us isn't important - it is - but is affects all our relationships (parents, siblings, friends, colleagues, managers and partners).

I would not mind if this was part of a series of discussions that covered the critical impacts of this disease. Our actual health, and support (or lack of), from the NHS is more important.

A missed opportunity that had far too narrow a focus for such a misunderstood disease.

I often share things endo related media with all my FB friends etc, but I would not share this feature. Why can't they pick up on the extensive work The Guardian did a few years and cover it in a similar way?

Thorough coverage of this disease on the BBC would reach so many generations of listeners and be so helpful. But we've had no proper coverage from Woman's Hour for years. The producers are letting us down. Just another set of people not willing to push the boat to understand this disease.

Hugely disappointed.

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I agree 100%. I was utterly disappointed with it too. 10 minutes about how it was hard for men too because they can't have as much sex as they might like. We don't even have a bleeping non-invasive diagnostic test. How it affects men is quite frankly the least important thing about endometriosis right now. If I had known it was going to be about that I wouldn't have posted it on here.

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Oh phew - I'm so relieved you feel this way too. I was trying to be diplomatic in my response, didn't want to offend anyone, particularly if the lady interviewed is a member on here.

But OMG it was shi*! What kind of journalism is this. And YES YES YES - this is the very LEAST of our issues.

I lost my career as a result of this disease (resigned after not recovering well after a few endo surgeries) and I know I lost trust of managers along the way (not all luckily) then had to pay for private health insurance after diagnosing myself and pay for IVF despite having a very good reason for my infertility.

Our health, our ability to look after our health and not live in pain, our ability to have a career and be financially independent for our own security comes way before my ability to have a regular sex life - in terms of how this disease has impacted me

And from my years on here (I used to be a member from 2012) but logged off - I am quite sure that in most cases - it's our boyfriends and husbands who are the most understanding because they live with us. So this is just way down the priority list and utterly poor coverage on what is, a really important show.. A HUGE LOST OPPORTUNITY.

Thanks for so much for summing up what I was afraid to say initially.

I had a few messages from my mum, and friends, saying they were listening. I was actually bloody embarrassed. Why the hell did that plonker of a guy have to say 'yeah I'm always ready when she's ready' (for it) Pee off, seriously.....

Ugh! xxxx